How Long Did It Take You to Get Diagnosed?

Lyme disease is still widely misunderstood by the medical profession. Through our awareness work, it is our wish that people are diagnosed more quickly so that they don’t miss the crucial window for early treatment but so many members of our Online Community have suffered for years on end, often […]

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Living in the Moment with Lyme

What is the most challenging part of living with Lyme disease? Let’s face it, there are enough physical symptoms that would be deserving answers to this question. Feeling so fatigued that lifting your arms to brush your hair is a struggle, irregular heartbeats thumping you from the inside your chest, […]

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What Do You Wish Your Doctor Understood About Lyme Disease?

Many Lyme patients hit a brick wall when we are faced with doctors who belittle our suffering and who are not knowledgeable about Lyme disease and its devastating effects. We asked our Online Community what they would like doctors to understand when it comes to living with Lyme disease: “That […]

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You Know You’re a Lymie When…

One of the hallmarks of Lyme disease is the dreaded ‘brain fog’ which can lead to some rather embarrassing mishaps. Sometimes, laughter is the best medicine and so we asked our Online Community to share some of their foggy moments by finishing the sentence ‘You know you’re a Lymie when…’ […]

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How Does Lyme Disease Affect Your Relationships?

This is a very hard and emotional question for many people to answer but we wanted to get a sense of how people’s relationships in our Online Community are affected. Many people feel a great sense of loss as those who were once so dear to us simply can’t or […]

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How Does the Weather Affect Lyme Patients?

As Brits, a national pastime seems to be complaining about the weather; it rarely seems to please us! One minute it’s too hot, the next it’s too cold and gloomy. When it comes to Lyme disease and some other chronic illnesses as well, the weather seems to play a significant […]

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What Has Made You Most Proud Since Becoming Unwell?

Sophie Ward posed the question ‘what has made you most proud since becoming unwell?’ to our Online Community… It’s a tough question in many ways. As our health fails we easily fall into the trap of having a mindset that leaves us feeling as though we are failing overall. It […]

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