As 2018 marks LDUKs 5th birthday and Christmas is on the horizon, we’ve been talking about celebrations and how to best manage our symptoms when trying to enjoy ourselves. The Christmas period can often leave us feeling stressed. There are so many people to see, so many events, so much […]
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As part of LDUK’s birthday celebrations, I wanted to share what the community means to me, and how it’s helped shaped my life. LDUK means the world to me. It was a place that called me family before I really understood my health or anything about Lyme disease. There were […]
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I lie half-crouching, half-prostrate upon dried mud littered with twigs and dead leaves. I am totally alert, poised, safely hidden behind tangled branches, ready to attack at a moment’s notice. I cannot see the enemy but I can hear them: the faint, unintelligible shouts of orders carrying on the wind. […]
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My love, You didn’t sign up for this. It’s a blessing that neither of us knew what fate had in store when we met. I’m not sure that I would have been brave enough to carry on and I know that I would not have wanted to bring you on […]
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Receiving a Lyme diagnosis triggers a mixture of emotions. Firstly, there is the relief that comes with discovering that we are in fact very sick and that illness isn’t in our heads like many doctors make out. Then there is the process of coming to terms with the fact that […]
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Lyme disease is still widely misunderstood by the medical profession. Through our awareness work, it is our wish that people are diagnosed more quickly so that they don’t miss the crucial window for early treatment but so many members of our Online Community have suffered for years on end, often […]
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What is the most challenging part of living with Lyme disease? Let’s face it, there are enough physical symptoms that would be deserving answers to this question. Feeling so fatigued that lifting your arms to brush your hair is a struggle, irregular heartbeats thumping you from the inside your chest, […]
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Many Lyme patients hit a brick wall when we are faced with doctors who belittle our suffering and who are not knowledgeable about Lyme disease and its devastating effects. We asked our Online Community what they would like doctors to understand when it comes to living with Lyme disease: “That […]
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One of the hallmarks of Lyme disease is the dreaded ‘brain fog’ which can lead to some rather embarrassing mishaps. Sometimes, laughter is the best medicine and so we asked our Online Community to share some of their foggy moments by finishing the sentence ‘You know you’re a Lymie when…’ […]
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This is a very hard and emotional question for many people to answer but we wanted to get a sense of how people’s relationships in our Online Community are affected. Many people feel a great sense of loss as those who were once so dear to us simply can’t or […]
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