I lie half-crouching, half-prostrate upon dried mud littered with twigs and dead leaves. I am totally alert, poised, safely hidden behind tangled branches, ready to attack at a moment’s notice. I cannot see the enemy but I can hear them: the faint, unintelligible shouts of orders carrying on the wind. […]Read more
Category: Living with Lyme
A Letter to My Love who has Cared for me Through Lyme Disease
My love, You didn’t sign up for this. It’s a blessing that neither of us knew what fate had in store when we met. I’m not sure that I would have been brave enough to carry on and I know that I would not have wanted to bring you on […]Read more
What Advice Would You Give To Someone Who Has Just Been Diagnosed with Lyme?
Receiving a Lyme diagnosis triggers a mixture of emotions. Firstly, there is the relief that comes with discovering that we are in fact very sick and that illness isn’t in our heads like many doctors make out. Then there is the process of coming to terms with the fact that […]Read more
How Long Did It Take You to Get Diagnosed?
Lyme disease is still widely misunderstood by the medical profession. Through our awareness work, it is our wish that people are diagnosed more quickly so that they don’t miss the crucial window for early treatment but so many members of our Online Community have suffered for years on end, often […]Read more
Living in the Moment with Lyme
What is the most challenging part of living with Lyme disease? Let’s face it, there are enough physical symptoms that would be deserving answers to this question. Feeling so fatigued that lifting your arms to brush your hair is a struggle, irregular heartbeats thumping you from the inside your chest, […]Read more
What Do You Wish Your Doctor Understood About Lyme Disease?
Many Lyme patients hit a brick wall when we are faced with doctors who belittle our suffering and who are not knowledgeable about Lyme disease and its devastating effects. We asked our Online Community what they would like doctors to understand when it comes to living with Lyme disease: “That […]Read more
You Know You’re a Lymie When…
One of the hallmarks of Lyme disease is the dreaded ‘brain fog’ which can lead to some rather embarrassing mishaps. Sometimes, laughter is the best medicine and so we asked our Online Community to share some of their foggy moments by finishing the sentence ‘You know you’re a Lymie when…’ […]Read more
How Does Lyme Disease Affect Your Relationships?
This is a very hard and emotional question for many people to answer but we wanted to get a sense of how people’s relationships in our Online Community are affected. Many people feel a great sense of loss as those who were once so dear to us simply can’t or […]Read more
How Does the Weather Affect Lyme Patients?
As Brits, a national pastime seems to be complaining about the weather; it rarely seems to please us! One minute it’s too hot, the next it’s too cold and gloomy. When it comes to Lyme disease and some other chronic illnesses as well, the weather seems to play a significant […]Read more
What Has Made You Most Proud Since Becoming Unwell?
Sophie Ward posed the question ‘what has made you most proud since becoming unwell?’ to our Online Community… It’s a tough question in many ways. As our health fails we easily fall into the trap of having a mindset that leaves us feeling as though we are failing overall. It […]Read more