Monia Selfie

My Lyme Story: Monia-Allah T Al-Haidary

I have been going to the doctors for two years now with various symptoms. Brain fog, dizziness, light-headedness, and, as charmingly scrawled on my notes time and time again, TATT (tired all the time). From October 2020, at the height of the pandemic, I had a urinary tract infection followed […]

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Photograph of Katharine Rhodes

My Lyme Story: Katharine Rhodes

The first symptom I can recall is the drop in my energy levels around 2014/15. I stopped wanting to do the things I liked so I went to my GP and had different tests, but everything returned normal. The fatigue slowly got worse. In 2017/18 further symptoms appeared. The first […]

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Jeff McCarthy Selfie

My Lyme Story: Jeff McCarthy

It was May 2013 when I first knew something was wrong. I had failed to complete a 5k race which had never happened to me before. I had to stop at the 3k mark as I just didn’t feel right and it wasn’t the normal type of fatigue you might […]

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Grace Stokes Image

My Lyme Story: Grace Ashley-Stokes

Scattered throughout the past few years, I’ve had strange signs and symptoms that something wasn’t right with my health. I had countless doctor appointments for bizarre symptoms that even they couldn’t find a clear answer for. In winter 2019, my health took a noticeable dip. I tried hard to ignore […]

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Photo of Andrew McGuinness

My Lyme Story: Andrew McGuinness

In 2010 Andrew had secured a two-book deal and just published his first novel, A Portrait of the Arsonist as a Young Man; David Bowie had allowed him to use his lyrics in the narrative. He’d won international short story prizes and an award for his work supporting new writers in Kent. He taught creative writing […]

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Image of Pam Howarth

My Lyme Story: Pam Howarth

My Lyme story started in February 2017 when I noticed a small, black speck on the outside of my thigh. I tried to brush it off but it seemed to be attached so I pulled at it and what came away was something about the size of a pin head […]

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Debbie Flay smiling on a beach.

My Lyme Story: Debbie Flay

At the time of my tick bite, I was a 59 year old woman, running a successful tutoring business and enjoying a healthy lifestyle by walking around 10k a day with our dog in the woods and fields in Bristol. During an August walk I was bitten. This was unusual […]

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Kelly Allaway Image

My Lyme Story: Kelly Allaway

Back in September 2020, I noticed a rash on my leg. I felt groggy all day, tired and achy, and when I woke up the following morning, it was as though an elephant had sat on my neck all night. It ached relentlessly. I had absolutely no idea about Lyme […]

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Calum’s Story

Calum Culbert aged 16 “living the lyme life” School pupil from Royal Deeside, Aberdeenshire, Scotland. An outdoors enthusiast, an active Scout, hill walker, interested in all rural pursuits and very keen fisherman, being a member of the Scottish Sea Angling Team. Walked and camped regularly. Despite best preventative efforts picked […]

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Kate’s Story

Journey into the unknown with Lyme disease by Kate Lawlor It is hard to say where it all began, as I am honestly not sure. In 2002, I took my young children to a nearby picnic area. We sat in a grassy area by a lake and then we went […]

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