A mother’s anonymous account of the struggles she faced obtaining appropriate treatment for her son’s Lyme disease. Early symptoms in paediatric Lyme disease On 23rd May 2026, I found a red mark on my 5-year-old son’s lower back. On closer look I noticed it was the mouthparts of a tick. […]
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My journey with Lyme disease did not start with answers, it started with confusion, fear, and a body that slowly began to feel like it was no longer my own. Lyme disease leads to urgent hospital care Back in December, things reached a point where I had no choice but […]
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Isabel de la Cour describes her battle with late Lyme disease and the difficulties she experienced in gaining the correct diagnosis and treatment. Isabel de la Cour in April 2026 Early Lyme symptoms and misdiagnosis I first became unwell in January 2016. I woke up fit, well, and healthy but […]
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In August 2019, I became very unwell with what felt like flu. I was bedbound for ten days and then suffered from a continuous sore throat for a further two months. My GP referred me to an ENT consultant for further investigations. This later developed into a thyroid storm, where […]
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I have Alpha-gal syndrome (AGS), which I think as a feminist is probably quite apt! But jokes aside, it’s a scary ride! I’m an outdoors person, always have been – I live rurally, was involved in outdoor education, am an avid camper, grow my own vegetables, and have always had […]
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Livestock farmer Eliena Lusty shares her horrible experience of being infected with both Lyme disease and orf, a viral skin infection. Showing the power of patient advocacy she was inspired to speak out after reading about local farmer Dan Duerden‘s journey with Lyme disease online. Severe symptoms and a delayed […]
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Lancashire farmer Dan Duerden was 22 when he developed Lyme disease whilst contract sheep shearing. Dan came home with a rash on his elbow, which he and his family initially thought was ringworm. Ticks can be tiny and their bite painless, so Dan did not see a tick or realise that he […]
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Tim Taylor shares his Lyme story, following a delayed diagnosis, challenging neurological symptoms and ill-health. Initial symptoms My story with Lyme officially started during the Easter school holiday in 2017. I was 51 and had been Deputy Head of a school in Lincolnshire for about 9 years. I was in […]
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Morgan-Hayley Bell shares her story about her harrowing experience of Lyme disease and the struggles she faced in receiving a diagnosis and treatment. Morgan-Hayley Bell Unexplained symptoms By early 2025, I was ready to resign from my job in London and move back to my parents home in Scotland. After […]
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Amelia (aged 9) was staying with her grandparents over the summer holidays when they noticed that her face didn’t look right and became increasingly concerned. On Monday 21st July 2025 Amelia’s mum contacted her GP with a photo. He replied quickly saying he thought Amelia had developed Bell’s palsy and […]
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