Privacy Policy

Data Protection

As the non-profit organisation Lyme Disease UK, it is our legal duty to protect any personal information you provide us with or any information we collect about you. This data will not be disclosed to anyone outside Lyme Disease UK without your permission unless we are under legal obligation to do so.

Privacy Policy

When do we collect information?

We obtain personal information from you in numerous ways including when you make a donation, engage in fundraising, fill out any online forms on our website, submit a case study to us, request awareness materials or other items on offer, volunteer with us, email us, phone members of our team or take part in any surveys we run.

Please note that if you upload photos, videos, posts and comments on our Online Community on Facebook, the information can be read by anyone with access to the Community and used for purposes over which LDUK may not have control. Therefore, LDUK is not responsible for any information you submit to the Online Community on Facebook. Our admin team monitors adherence to our Community rules which can be found in the pinned post of our Online Community. These rules include the request that members do not share information outside of the Community but Community members post at their own risk.

What information do we hold?

Information Lyme Disease UK holds could include anything you have shared with us by email, online forms or via our donate link such as:

  • Your name
  • Your email address
  • Your date of birth
  • Medical information you have sent us
  • Photographs you have sent us
  • Financial information provided when donating to LDUK
  • Opinions shared in surveys

How do we use this information?

We will only use your personal information to provide you with items you have requested, for administration purposes and for furthering the work of Lyme Disease UK. For example:

  • responding to correspondence you have sent;
  • processing a donation you have made;
  • sending you information and news if requested;
  • asking for your input to consultations or media enquiries;
  • data analysis and research

We will not use your data for any other reason than the purpose for which it is intended. We will never pass your name, address or contact details to third parties without your consent.

How do we protect personal information?

We do everything we can to ensure that the information disclosed to us is kept secure and only for as long as is necessary for the purposes for which it is used. Please ensure your computer or mobile device is secure. Communication with LDUK is at your own risk. We do our best to ensure that your data is protected but we cannot guarantee the safety of the data you email us from your personal devices. For any external and embedded links featured on the LDUK website, clicking on them is the same as visiting those external sites and it is your responsibility to familiarise yourself with those websites’ own privacy policies to find out what data they may collect.


We use Google Analytics tracking cookies to collect anonymous traffic data about your use of this website. This information is stored by Google and subject to their privacy policy, which can be viewed here. Google Analytics collects information such as pages you visit on this site, the browser and operating system you use and time spent viewing pages. The purpose of this information is to help us improve the site for future visitors.


By providing us with your personal data, you consent to the collection and use of any information you provide in accordance with the above purposes and this privacy policy.

What rights you have over your data

If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

If you would like to request erasure of any data we may hold about you or if you have any queries about data protection, please email

This privacy policy may change over time but the applicable version will always be available on this website.

Please see our website Terms and Conditions here.