Breaking the stigma of late Lyme disease There’s nothing quite like lived experience as a catalyst for igniting passion for change. I feel completely surrounded by this passion as part of the LDUK team and member of the wider Lyme community. Despite ill-health, the care for other patients and […]
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For many people, travel is a healer, a motivator, a goal and the best way to expand horizons. For those who are chronically ill, it can represent a struggle with uneasiness about how symptoms will be manageable, how pacing will be possible throughout the trip and how dietary requirements will […]
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Living with Lyme disease is no small challenge, especially for those of us dealing with late-stage Lyme. We have to fight for the correct diagnosis and then fight for the adequate treatment. This complex illness requires us to be medical detectives, sourcing the most suitable practitioners to help us along […]
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My name is Julia Knight & I’m the Press Manager for Lyme Disease UK. I thought I might be interesting for people to have an insight into what this role entails and how very interesting it can be! How did I end up doing this job? A Brief history of […]
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LDUK is delighted to welcome James Herbert to our team of volunteers as our Business Development Manager! When you go through trauma in life, if you are lucky enough to come out of the other side, you start looking for positives. Have you developed as a person? What have you […]
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This question is a highly emotional one. I wanted to raise this question in LDUK’s Online Community because I am extremely lucky to have such a strong support system. However, this doesn’t lighten the load of guilt and disappointment I feel. I know so many sufferers will feel guilty about […]
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Summer 2019 has generally been good to us but this winter is set to be another harsh one. With the rollercoaster of the seasons and a climate that is continuously changing, how is our health being affected? Many of us take holidays abroad in order to chase the sun and […]
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This is a tough cookie of a question. It pulls on the heartstrings and it can open up some raw wounds. Thank you to everyone who found the courage to share your experiences and respond to this question. I fully understand how hard it is to answer. In a study […]
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This question is heartbreaking, and I know for many people, it sparks SO many different emotions which are often, understandably, negative. When I asked this question in our Online Community, the main responses were: embarrassed, angry and let down. We feel embarrassment because we don’t want people seeing us as […]
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An erythema migrans otherwise known as an EM, is the rash associated with Lyme disease. The rash does not occur in every case of Lyme disease but if a patient does present with an EM rash then no blood test is required and treatment should be prescribed immediately as per […]
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