Monia Selfie

My Lyme Story: Monia-Allah T Al-Haidary

I have been going to the doctors for two years now with various symptoms. Brain fog, dizziness, light-headedness, and, as charmingly scrawled on my notes time and time again, TATT (tired all the time). From October 2020, at the height of the pandemic, I had a urinary tract infection followed […]

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Photograph of Katharine Rhodes

My Lyme Story: Katharine Rhodes

The first symptom I can recall is the drop in my energy levels around 2014/15. I stopped wanting to do the things I liked so I went to my GP and had different tests, but everything returned normal. The fatigue slowly got worse. In 2017/18 further symptoms appeared. The first […]

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Stock image of sick woman

Our Daughter and Lyme Disease

Lyme Disease has changed everything for my family. Our teenage daughter has been very sick since 2018. She became increasingly ill over a period of time with strange and seemingly unrelated symptoms, something most Lyme patients can relate to. School would call us and say *Anna was feeling faint and […]

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Photo of Nick and Sophie

Half Ironman Fundraiser for LDUK

Nick Clarke has been in touch with us to share his story and let us know he’ll be raising money for LDUK on behalf of his wife, Sophie, who lives with Lyme disease. You can sponsor him via his Virgin Money Giving page. Thank you to Nick, James and Beth […]

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Jeff McCarthy Selfie

My Lyme Story: Jeff McCarthy

It was May 2013 when I first knew something was wrong. I had failed to complete a 5k race which had never happened to me before. I had to stop at the 3k mark as I just didn’t feel right and it wasn’t the normal type of fatigue you might […]

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what happens when doctors don't have all the answers?

What happens when doctors don’t have all the answers?

Katharine Cheston is a PhD researcher at the Institute for Medical Humanities, Durham University. Her research, funded by the Wellcome Trust, focuses on experiences of illness that can be considered to be ‘medically unexplained’. She has previously volunteered for charities and organisations working with people living with complex, poorly-understood medical […]

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Grace Stokes Image

My Lyme Story: Grace Ashley-Stokes

Scattered throughout the past few years, I’ve had strange signs and symptoms that something wasn’t right with my health. I had countless doctor appointments for bizarre symptoms that even they couldn’t find a clear answer for. In winter 2019, my health took a noticeable dip. I tried hard to ignore […]

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Photo of Andrew McGuinness

My Lyme Story: Andrew McGuinness

In 2010 Andrew had secured a two-book deal and just published his first novel, A Portrait of the Arsonist as a Young Man; David Bowie had allowed him to use his lyrics in the narrative. He’d won international short story prizes and an award for his work supporting new writers in Kent. He taught creative writing […]

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Image of Pam Howarth

My Lyme Story: Pam Howarth

My Lyme story started in February 2017 when I noticed a small, black speck on the outside of my thigh. I tried to brush it off but it seemed to be attached so I pulled at it and what came away was something about the size of a pin head […]

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Debbie Flay smiling on a beach.

My Lyme Story: Debbie Flay

At the time of my tick bite, I was a 59 year old woman, running a successful tutoring business and enjoying a healthy lifestyle by walking around 10k a day with our dog in the woods and fields in Bristol. During an August walk I was bitten. This was unusual […]

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