European Parliamentary Debate on Lyme Disease

On Thursday 15th November 2018, Lyme disease will be debated at the European Parliament in Strasbourg between 9am-11.50am (8.00am – 10.50am GMT). You can read the agenda here You can tune in to watch the debate online here It is good that Lyme disease is getting attention from MEPs and […]

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5 Years of Patient Support – the LDUK Online Community

Over the past 5 years, the Lyme Disease UK’s Online Community has grown from two founding patients, Natasha Metcalf and Louise Dean, to a community of over 9,500 members from across the UK and further abroad. Whilst it is wonderful that so many patients and their loved ones who are […]

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Avril Lavingne’s Song Inspired by Lyme Hits the Charts!

Singer Avril Lavigne has released a new song ‘Head Above Water’ which is the first music she has released in 5 years because she has been battling Lyme disease. The track is climbing the iTunes charts and the powerful lyrics will undoubtedly resonate with the Lyme community and beyond. Avril […]

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How Long Did It Take You to Get Diagnosed?

Lyme disease is still widely misunderstood by the medical profession. Through our awareness work, it is our wish that people are diagnosed more quickly so that they don’t miss the crucial window for early treatment but so many members of our Online Community have suffered for years on end, often […]

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Living in the Moment with Lyme

What is the most challenging part of living with Lyme disease? Let’s face it, there are enough physical symptoms that would be deserving answers to this question. Feeling so fatigued that lifting your arms to brush your hair is a struggle, irregular heartbeats thumping you from the inside your chest, […]

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Activity Pack for Children

If you’re looking for something to entertain and educate children please download our free printable Lyme Disease UK Activity Pack here. There is more information about keeping children safe including a full school pack here. Do share their finished colouring on social media and tag Lyme Disease UK in your posts.

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What Do You Wish Your Doctor Understood About Lyme Disease?

Many Lyme patients hit a brick wall when we are faced with doctors who belittle our suffering and who are not knowledgeable about Lyme disease and its devastating effects. We asked our Online Community what they would like doctors to understand when it comes to living with Lyme disease: “That […]

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You Know You’re a Lymie When…

One of the hallmarks of Lyme disease is the dreaded ‘brain fog’ which can lead to some rather embarrassing mishaps. Sometimes, laughter is the best medicine and so we asked our Online Community to share some of their foggy moments by finishing the sentence ‘You know you’re a Lymie when…’ […]

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