In My Blood – A Story of Lyme Disease in the UK

    In my Blood is an in depth look at the complex and baffling world of Lyme disease in the UK, as told by people whose lives have been shaped by it. The piece starts with the difficulties surrounding diagnosis and how many patients took years to finally get […]

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Lyme Disease Testing Controversy Continues…

The media interest in Lyme disease has spiked again recently with LDUK group member Emma Horlock sharing her story widely in the Daily Mail, the Liverpool Echo, ITV News and the BBC News. Emma has gone from running her own successful PR firm to spending 22 hours per day in […]

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Fight Lyme Now Campaign Goes Live!

The ‘Fight Lyme Now’ campaign was set up by LDUK group member Demetrios Loukas and comprises of a patient survey hosted by Neil Coyle MP for Bermondsey and Old Southwark and a petition for UK citizens to sign. The survey needs a minimum of 1,000 UK Lyme disease patients to […]

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Public Health England Lyme Disease Open Day March 2015

PHE conducted a very last minute open day on 25th March 2015, changing the date with less than two weeks’ notice. The few people who did manage to make it reported back from the meeting and the following document is now available giving detailed information on the event. Sadly, many […]

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Forum Feedback: Patient-Led Parliamentary Lyme Disease Conference

Lyme Disease UK would like to say a big congratulations to all the organisers and speakers at the Lyme Disease Forum in the Houses of Parliament in London on 19th January 2015. It was a very well attended event with a great mixture of doctors, scientists and patients. The presentations were […]

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NHS National Referral Clinic To Close

The NHS National Lyme Disease Referral clinic that has been open for just 6 months has closed. We had heard reports from patients of the clinic that the service was going to be discontinued in its present form from February 2014 onwards. In late February we asked Dr Dryden what […]

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Group Questions Answered

Lyme Disease UK submitted a document containing 59 questions for the staff at the Rare & Imported Pathogens lab and the new Lyme Disease Referral Clinic at Winchester before the PHE Lyme disease conference in October 2013. These were compiled by our discussion group members in collaboration. We hoped that […]

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PHE Lyme Disease Conference 2013

Public Health England held a Lyme disease conference in London on 9th October 2013. Speakers included Dr Tim Brooks from the Rare & Imported Pathogens Lab, Dr Matthew Dryden who is running the new national Lyme disease referral clinic in Winchester, Dr Alastair Miller Infectious Disease consultant, The Countess of […]

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