If you are affected by this story you can call the Samaritans for free on 116123 or for children and young people and anyone concerned about them, the Professional Suicide Prevention Service Hopeline (PAPYRUS) on 0800 068 41 41 TV presenter Caroline Flack died this month. It triggered something very […]
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Living with Lyme disease is no small challenge, especially for those of us dealing with late-stage Lyme. We have to fight for the correct diagnosis and then fight for the adequate treatment. This complex illness requires us to be medical detectives, sourcing the most suitable practitioners to help us along […]
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Lyme disease is a complex condition that can leave many of us feeling alone. We don’t always know where to turn, doctors don’t understand our symptoms; family members can’t always relate, and friends often struggle to see our pain. That’s why LDUK is so important – we have an amazing […]
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I have been ill since I was 16 years old. I suffered with a ‘mystery illness’ for many years after removing what I thought was a tiny splinter from my leg, following a mountain hike. It was the Christmas holidays and we were living in Hong Kong at the time. […]
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Calum Culbert aged 16 “living the lyme life” School pupil from Royal Deeside, Aberdeenshire, Scotland. An outdoors enthusiast, an active Scout, hill walker, interested in all rural pursuits and very keen fisherman, being a member of the Scottish Sea Angling Team. Walked and camped regularly. Despite best preventative efforts picked […]
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Ben Bechtel wrote a heartfelt post on Facebook recently about his experience watching his partner Lindsey struggle with Lyme disease. He talks about getting into the water with her, and helping her through the immense difficulties of life with Lyme disease. Thank you for giving us permission to share this, […]
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We’re thrilled to announce our inclusion in Feedspot’s top 25 Lyme blogs at number 14. So many fantastic global publications are on the list such as Lymedisease.org, CanLyme and Global Lyme Alliance. Our goal for the blog is to create quality posts about Lyme disease from a patient perspective. To help […]
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For many people with ongoing health problems, life has changed since a diagnosis and they’ve had to adapt their work, adjust to medications and find ways to fit their illness around their lives. These are often the people you think of when you hear ‘chronic illness’. These are the people […]
Read moreMany thanks to Laura Brown for this post showing how important it is to keep perspective on our illness and to see the positives. You can read more of her blog over at http://lauralyme.tumblr.com which also links to her fundraising campaign for Lyme disease treatment. A Question of Perspective […]
Read moreThe NHS National Lyme Disease Referral clinic that has been open for just 6 months has closed. We had heard reports from patients of the clinic that the service was going to be discontinued in its present form from February 2014 onwards. In late February we asked Dr Dryden what […]
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