Letter to MPs and LDUK Response to Government Petition Statement

  LDUK group members signed and shared a petition demanding better testing and treatment for Lyme disease which generated over 10,000 signatures. The government then had to issue an official response which can be found here. LDUK members were dissatisfied with the official response and some prepared their own responses […]

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UK Lyme Disease Protest 2016

LDUK members were involved in two protests this year – one in Bath and one in London. The 10 aims of the protests can be found here. The events achieved unprecedented media attention with patients being interviewed around the country in newspapers, on TV and on local radio shows as […]

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AONM Lifting the Veil III Conference

  On 15th May 2016, the Academy of Nutritional Medicine hosted the third event in their ‘Lifting the Veil’ series of conferences which look into important questions surrounding chronic diseases. It was an extremely well attended event with international doctors and scientists delivering extremely thought-provoking and enlightening presentations. It was […]

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Lyme Disease Testing Controversy Continues…

The media interest in Lyme disease has spiked again recently with LDUK group member Emma Horlock sharing her story widely in the Daily Mail, the Liverpool Echo, ITV News and the BBC News. Emma has gone from running her own successful PR firm to spending 22 hours per day in […]

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Local Patient Support Groups

There are regular as well as occasional local face to face patient support groups (not run by LDUK), happening around the UK. Keep checking back to see if there’s one happening near you! These groups give patients and carers the opportunity to meet people in a similar situation nearby, make […]

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Fight Lyme Now Campaign Goes Live!

The ‘Fight Lyme Now’ campaign was set up by LDUK group member Demetrios Loukas and comprises of a patient survey hosted by Neil Coyle MP for Bermondsey and Old Southwark and a petition for UK citizens to sign. The survey needs a minimum of 1,000 UK Lyme disease patients to […]

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Tick Removal – Using Tweezers or a Tick Removal Tool

If you find an embedded tick in your skin, what do you do?  The longer a tick is left to feed, the higher the chances are that it will pass on any diseases it’s carrying. Incorrect removal will also increase the chances of disease transmission. So whilst it is important to […]

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Frequently Asked Questions

Q: What is Lyme disease? Lyme disease is an infectious disease caused by a spirochetal bacteria known as Borrelia. It is most commonly transmited through the bite of an infected tick. It is possible for a mother to pass the disease on to her unborn child and more research is […]

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NHS National Referral Clinic To Close

The NHS National Lyme Disease Referral clinic that has been open for just 6 months has closed. We had heard reports from patients of the clinic that the service was going to be discontinued in its present form from February 2014 onwards. In late February we asked Dr Dryden what […]

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