In 1999 I was a highly qualified Specialist Nurse Practitioner, Paediatric Nurse. I had spent the last 12 months setting up a Community Children’s Nursing Service in Lincolnshire – the first in that part of the UK. I was due to start my Master’s Degree in NHS Management, and was […]
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‘An Inadequate Tool for Doctors and Patients, Seriously Undermined by Lack of Evidence’ Lyme Disease UK is a registered stakeholder in the NICE Lyme disease guideline writing process. As the UK’s largest patient support network, taking part in this process has been an important priority because once finalised, the guideline […]
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LDUK were delighted to attend the AONM May 2017 conference titled Chronic Disease Uncovered – Lyme Disease, Viral Pathogens, Morgellons, Mould and More… on Sunday 14th May 2017 The conference was very informative with excellent presentations from key experts on the latest testing, treatment approaches and research into chronic […]
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Rachel Alban is an artist living with Lyme disease in the North of England. In this guest blog post she discusses her illness and the effect it’s had on her art. You can find out more about her work from her website. http://www.rkalbanart.co.uk/ ‘When life gives you lemons, make lemonade’. This […]
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Lyme Ninja Radio is ‘the #1 podcast for people with Lyme disease’. The well established show interviews experts and patients alike and this time, it has been the UK’s turn in the Lyme Ninja Radio limelight! They’ve recently featured two well known UK pracitioners and a UK patient. #121 Chantelle […]
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For many people with ongoing health problems, life has changed since a diagnosis and they’ve had to adapt their work, adjust to medications and find ways to fit their illness around their lives. These are often the people you think of when you hear ‘chronic illness’. These are the people […]
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In my Blood is an in depth look at the complex and baffling world of Lyme disease in the UK, as told by people whose lives have been shaped by it. The piece starts with the difficulties surrounding diagnosis and how many patients took years to finally get […]
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On 15th May 2016, the Academy of Nutritional Medicine hosted the third event in their ‘Lifting the Veil’ series of conferences which look into important questions surrounding chronic diseases. It was an extremely well attended event with international doctors and scientists delivering extremely thought-provoking and enlightening presentations. It was […]
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The media interest in Lyme disease has spiked again recently with LDUK group member Emma Horlock sharing her story widely in the Daily Mail, the Liverpool Echo, ITV News and the BBC News. Emma has gone from running her own successful PR firm to spending 22 hours per day in […]
Read moreThe NHS National Lyme Disease Referral clinic that has been open for just 6 months has closed. We had heard reports from patients of the clinic that the service was going to be discontinued in its present form from February 2014 onwards. In late February we asked Dr Dryden what […]
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