Kirk and Nelly’s Charity Dinners

World renowned chefs Kirk Haworth and Nelly Robinson teamed up to serve up a charity dinner on 20th October 2016 in the prestigious Michelin star Northcote restaurant in aid of LymeAid UK and Vis-à-Vis Symposiums. The evening was a great success, raising over £17,000 for UK Lyme disease charities. They […]

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Letters to BBC Radio 4 Woman’s Hour

On 12th July 2016, Woman’s Hour on Radio 4 covered the subject of Lyme disease. The programme can be listened to here. The feature starts at approximately 24 minutes in. This slot came about as a result of a letter from Louise Alban to Radio 4 editors, which can be […]

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A Bout with an Alien Entity

This month’s guest blog is by LDUK group member and osteopath, Robert Hale who describes the sense of invasion that often accompanies Lyme disease and as a health professional, gives a unique perspective on becoming a patient. He blogs at A Quack’s Diary. The experience You are lying in bed, as […]

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MPs meet Lyme Sufferers!

MPs gathered in Room T, Portcullis House on 6th September 2016 for the drop-in meeting to meet Lyme disease sufferers and their loved ones to discuss the very important issues of Lyme disease testing, diagnosis and treatment. It was a chance for LDUK members to share their personal stories and […]

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Travels Through Lyme Disease UK

This month’s guest blog is by Natasha Metcalf, who along with Louise Dean, co-founded Lyme Disease UK. Natasha reflects on how LDUK began, what the group has taught her as well as her personal journey with the illness. The past few years have been a whirlwind and a roller-coaster combined. […]

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Caudwell Lyme Disease’s Patient Survey Results Published!

Source: Caudwell Lyme Disease The charity, Caudwell Lyme Disease has now published the results in full of a survey conducted to find out more about Lyme disease patients’ experiences with with NHS care. Many LDUK members took part in the survey and the results highlight major problems with the way […]

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NICE Guideline Scope Stakeholder Comments Published

  ‘Lyme Disease UK is a patient support network with nearly 4000 members and bears witness daily to thousands of patients who are suffering on an inhumane scale. Many have been ridiculed by medical professionals in various disciplines, dismissed, belittled, neglected and left with increasingly frightening and painful symptoms for […]

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UK Lyme Disease Protest Video!

“This is such a serious health crisis” LDUK group member Rollo Skinner has created this very powerful and moving film after interviewing many Lyme disease sufferers who attended the 2016 protest in London. Against the dramatic backdrop of Westminster, this video documents the plight of Lyme disease sufferers in this […]

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Letter to MPs and LDUK Response to Government Petition Statement

  LDUK group members signed and shared a petition demanding better testing and treatment for Lyme disease which generated over 10,000 signatures. The government then had to issue an official response which can be found here. LDUK members were dissatisfied with the official response and some prepared their own responses […]

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