UK Lyme sufferers, friends and family members protested outside the Department of Health on 13th May 2015 to demand a change in the way Lyme disease is handled in this country. Patients want to see improvements in the diagnostic and treatment process of Lyme disease as well as recognition of […]
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Lyme Disease UK would like to say a big congratulations to all the organisers and speakers at the Lyme Disease Forum in the Houses of Parliament in London on 19th January 2015. It was a very well attended event with a great mixture of doctors, scientists and patients. The presentations were […]
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Elaine Griffin from Ireland has been suffering with poor health for 24 years. Here she talks about getting an eventual Lyme disease diagnosis, her fundraising and creating her awareness music single ‘Once Bitten Twice Shy’ which includes tick prevention information and a tick remover. **************************************************** Hi Everyone, My name is Elaine Griffin […]
Read moreILADS hosted its Annual Lyme Disease Conference in Washington DC, USA on 10-12th October. Twitter was ablaze with live updates from the event which LDUK tuned into and according to @DrDanielCameron, the current president, ILADS’ membership has ‘more than doubled in past 3 years’ which is an exciting prospect for […]
Read moreMany thanks to Laura Brown for this post showing how important it is to keep perspective on our illness and to see the positives. You can read more of her blog over at http://lauralyme.tumblr.com which also links to her fundraising campaign for Lyme disease treatment. A Question of Perspective […]
Read moreThe NHS National Lyme Disease Referral clinic that has been open for just 6 months has closed. We had heard reports from patients of the clinic that the service was going to be discontinued in its present form from February 2014 onwards. In late February we asked Dr Dryden what […]
Read moreMoving the goal posts by Sophie Grace Kellaway Recently I’ve noticed that as I’ve been recovering, I’ve been changing my targets for wellness. By moving the goalposts without even realising, I’ve been feeling like I’ve not been making progress. Only when I’ve stopped to think about the real changes can […]
Read moreHappy new year! Our next guest blog is from UK patient and LDUK group member Jas Mathews and talks about living with chronic Lyme disease and how she meets the unique challenges it brings. Read more of her blog here http://lojango.blogspot.co.uk/. If you have a blog you would like featured, please […]
Read moreLyme Disease UK submitted a document containing 59 questions for the staff at the Rare & Imported Pathogens lab and the new Lyme Disease Referral Clinic at Winchester before the PHE Lyme disease conference in October 2013. These were compiled by our discussion group members in collaboration. We hoped that […]
Read morePublic Health England held a Lyme disease conference in London on 9th October 2013. Speakers included Dr Tim Brooks from the Rare & Imported Pathogens Lab, Dr Matthew Dryden who is running the new national Lyme disease referral clinic in Winchester, Dr Alastair Miller Infectious Disease consultant, The Countess of […]
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