Rothley Park Golf Club Charity Lunch

On 18th February 2020, LDUK Chair Natasha Metcalf was invited to the Rothley Park Golf Club Ladies Charity Lunch hosted by Lady Captain, Jenny Piecha, whose daughter Samantha suffers from Lyme disease. Jenny and the club have very kindly chosen to support Lyme Disease UK this year. Natasha, Jenny and […]

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LDUK Attends Duke of Edinburgh’s Award Conference

Recently LDUK were invited to attend The Duke of Edinburgh’s Award Central England Regional Conference at Eastwood Hall in Nottingham. Jackie Bull, who is a Regional Director at DoE, was very keen for LDUK to be present at the event. Jackie explained to us: “The Duke of Edinburgh’s Award recognises […]

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Inconsistencies in Lyme Disease Policies Explored

A new paper entitled, ‘Knowledge and Uncertainty in Lyme Disease Detection: An Evidence-Based Activism Research Study in the UK,’ has emerged in the journal Critical Public Health following research conducted by Professor Alex Faulkner at the University of Sussex and the patient organisation Lyme Research UK, led by Kate Bloor. […]

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LDUK Rep Attends Research Workshop on Lyme Disease

In November 2019, LDUK Patient Ambassador, Samantha Ash, attended a workshop held by the NIHR Health Protection Research Unit in Emerging and Zoonotic Infections to discuss research priorities in the field of Lyme disease. Representatives from other charities and patient groups were also in attendance. We are grateful to have […]

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Fun Fundraisers

As a charity we rely a lot on the generosity of our Online Community members and the general public to help raise funds to enable LDUK to push for change and create helpful resources. Hosting a fundraiser can be daunting and glossy events featured in the media can create the […]

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Justin Bieber Raises Awareness of Lyme Disease Struggle

Singer Justin Bieber has created a fresh wave of Lyme disease awareness this month by revealing his struggle with Lyme disease, which was mistaken for mental health problems and even drug abuse. On his social media channels, the singer said “I’ve been recently diagnosed with Lyme disease, not only that […]

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Group Projects 2019

What a phenomenal year 2019 has been for LDUK and awareness of tick bites, Lyme disease and other tick borne diseases. We are continually inspired by the members of the Lyme community, our fantastic volunteers, and all those who participate in fundraising to enable us to continue raising awareness and […]

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Chronic Christmas by Sophie Ward

It is no lie or exaggeration to say that Christmas can be a very daunting time. There is so much to think about, to balance and to sort out and this is not easy when your mind is in a fog. With the long preparation time, it can seem endless. […]

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Breaking the Stigma of Late Lyme Disease

Breaking the stigma of late Lyme disease There’s nothing quite like lived experience as a catalyst for igniting passion for change.   I feel completely surrounded by this passion as part of the LDUK team and member of the wider Lyme community. Despite ill-health, the care for other patients and […]

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