Vis-a-Vis Symposiums

We are delighted to announce the launch of a new UK based charity, Vis-a-Vis Symposiums. The first London Tick-Borne Disease Symposium was privately funded and held in June 2014 and now that the charity has been established, the aim is to hold regular educational events on this subject. Patrons include […]

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Lyme Disease or Lymes Disease?

Many names, one disease You may have heard many different variations of the name ‘Lyme disease’, including Lymes disease, Lyme’s disease, Borreliosis and Lyme Borreliosis. We hope this post helps to clear up any confusion surrounding the correct name. The infectious agent that causes Lyme disease is technically a bacteria […]

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Lyme Disease Testing Controversy Continues…

The media interest in Lyme disease has spiked again recently with LDUK group member Emma Horlock sharing her story widely in the Daily Mail, the Liverpool Echo, ITV News and the BBC News. Emma has gone from running her own successful PR firm to spending 22 hours per day in […]

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Living in the Now…Happy 2016 – LadyofLyme.com

Many thanks to LadyofLyme.com for allowing us to feature this optimistic article for this month’s Guest Blog Living in the Now…Happy 2016 By Christina Kovacs (aka Lady of Lyme) “Care about what other people think and you will always be their prisoner.” – Lao Tzu If I let the worry […]

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LDUK Registers as Stakeholder for NICE Lyme Disease Guidelines

We are delighted to announce that the LDUK Co-Founders have registered as stakeholders for the upcoming National Institute for Health and Care Excellence (NICE) Lyme disease guideline writing process. If any other patient groups or organisations would like to register as stakeholders, please check your eligibility and complete this online […]

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Questions Posed to Lyme Disease Action

During the recent media coverage of Lyme disease, quotes from Lyme Disease Action provoked some concern amongst LDUK members that the charity wasn’t representing patients accurately. Some of the information given out was called into question as well as the role of the charity. Lyme Disease Action then requested that […]

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Local Patient Support Groups

There are regular as well as occasional local face to face patient support groups (not run by LDUK), happening around the UK. Keep checking back to see if there’s one happening near you! These groups give patients and carers the opportunity to meet people in a similar situation nearby, make […]

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UK Lyme Disease Patient Survey

Patient led campaign Fight Lyme Now has produced a survey on the experiences of Lyme disease patients in this country to obtain data. Mr. Neil Coyle, MP for Old Southwark and Bermondsey began hosting the survey but it has now been taken over by Robert Buckland, MP for South Swindon who […]

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