A Lyme Success Story!

Layers of Lyme Disease A Recovery Story by Hannah Green www.layersoflyme.com Hannah with best mate, Radar My name is Hannah Green. I’m 41 years old, British and currently live in Sydney, Australia. In my 20s I was very active, riding, sailing and travelling. After back-packing for a year I fell […]

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Our Response to the Draft NICE Guideline

‘An Inadequate Tool for Doctors and Patients, Seriously Undermined by Lack of Evidence’ Lyme Disease UK is a registered stakeholder in the NICE Lyme disease guideline writing process. As the UK’s largest patient support network, taking part in this process has been an important priority because once finalised, the guideline […]

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LDUK Attends ‘Unrest’ Preview

Earlier this year Lyme Disease UK was approached by the Unrest impact team who had been tasked with bringing the film to the UK and getting us involved  in promoting their award winning documentary across our various social media platforms. Written & filmed by ME sufferer Jennifer Brea, the film […]

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Lyme Disease: Where Am I At? by Rachel Bowerman

LDUK Social Media Manager, Rachel Bowerman, shares her latest post with us from her blog Blah, Blah, Blog. Ten years have now passed since the initial onset of my Lyme disease symptoms, and I’ve been on a learning journey since I discovered its presence early last year. Lyme disease and […]

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Janey and Lorraine Scottish Parliament for Lyme disease awareness

Scottish Parliament Public Petitions Committee

On 14th September 2017, LDUK members, Janey Cringean and Lorraine Murray presented to the Scottish Parliament Public Petitions Committee on behalf of Tick-Borne Illness Campaign Scotland regarding their petition “PE01662: Improve Treatment for Patients with Lyme Disease and Associated Tick-borne Diseases“. Janey gave a five minute introductory presentation on Lyme […]

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NICE logo

NICE Guidelines – What’s Next?

In 2015, LDUK registered as stakeholders in the process. Representatives from LDUK attended a stakeholder meeting in February 2016 and submitted our comments on the draft scope. NICE completes five steps before new guidelines are published. The Lyme disease guidelines are currently at step 3. The details of the steps […]

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Samantha Ash with Matt Dawson

Matt Dawson Speaks Out

Matt Dawson with LDUK Spokesperson, Samantha Ash On 21st August, rugby star Matt Dawson spoke out about his Lyme Disease diagnosis and subsequent heart surgeries. Dawson sustained a tick bite while out in a London park with his family. Talking initially to Radio Five Live he described his symptoms, the […]

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Kestrels FC supporting LDUK

Maidstone Kestrels U11 Fun Day!

On 26th August 2017, over 800 people turned up for the football team’s fun day in beautiful sunny weather. Half of the proceeds from the day went to LDUK. Ann from LDUK and Adam Wearing the LDUK logo, Adam Keil, the organiser said, ‘We are just glad and proud to […]

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Sophie Ward

Finding Worth When Suffering by Sophie Ward

This month’s guest blogger is Sophie Ward, who is the author of the blog Sophantastic  in which she shares her experiences and reaches out to people with food intolerances, depression, chronic pain, nerve damage, chronic illness, Lyme Disease, co-infections, anxiety and low-self esteem. Her blog is full of stories and tips […]

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