My recent journey with Lyme disease began in summer 2025 after a tick bite. However, I have had a previous history of Lyme disease, which I also want to briefly share. Maja Bagdziun In 2015, during camping in Scotland, I was infested with ticks. I think I must have removed […]
Read more
A mother’s anonymous account of the struggles she faced obtaining appropriate treatment for her son’s Lyme disease. Early symptoms in paediatric Lyme disease On 23rd May 2026, I found a red mark on my 5-year-old son’s lower back. On closer look I noticed it was the mouthparts of a tick. […]
Read more
My journey with Lyme disease did not start with answers, it started with confusion, fear, and a body that slowly began to feel like it was no longer my own. Lyme disease leads to urgent hospital care Back in December, things reached a point where I had no choice but […]
Read more
Isabel de la Cour describes her battle with late Lyme disease and the difficulties she experienced in gaining the correct diagnosis and treatment. Isabel de la Cour in April 2026 Early Lyme symptoms and misdiagnosis I first became unwell in January 2016. I woke up fit, well, and healthy but […]
Read more
In August 2019, I became very unwell with what felt like flu. I was bedbound for ten days and then suffered from a continuous sore throat for a further two months. My GP referred me to an ENT consultant for further investigations. This later developed into a thyroid storm, where […]
Read more
Livestock farmer Eliena Lusty shares her horrible experience of being infected with both Lyme disease and orf, a viral skin infection. Showing the power of patient advocacy she was inspired to speak out after reading about local farmer Dan Duerden‘s journey with Lyme disease online. Severe symptoms and a delayed […]
Read more
Tim Taylor shares his Lyme story, following a delayed diagnosis, challenging neurological symptoms and ill-health. Initial symptoms My story with Lyme officially started during the Easter school holiday in 2017. I was 51 and had been Deputy Head of a school in Lincolnshire for about 9 years. I was in […]
Read more
Amelia (aged 9) was staying with her grandparents over the summer holidays when they noticed that her face didn’t look right and became increasingly concerned. On Monday 21st July 2025 Amelia’s mum contacted her GP with a photo. He replied quickly saying he thought Amelia had developed Bell’s palsy and […]
Read more