Living with Lyme disease is no small challenge, especially for those of us dealing with late-stage Lyme. We have to fight for the correct diagnosis and then fight for the adequate treatment. This complex illness requires us to be medical detectives, sourcing the most suitable practitioners to help us along […]Read more
Molyneux Community Centre Blackpool, Lyme Disease Fundraiser.
What an amazing event this fundraiser was. I was so honoured to be invited to attend Molyneux Community Centre on behalf of LDUK last week. I was made to feel comfortable from the get-go and was looked after so well, I am so thankful to everyone present for going above […]Read more
QM Sapphires Cheerleading Team Support LDUK!
Lyme Disease UK received a donation this month from the QM Sapphires cheerleading team of Queen Margaret University, Edinburgh. LDUK community member, Janey Cringean, went along to a special event to accept the donation on our behalf. She told us, “The event was an inter-university cheerleading competition involving different universities […]Read more
What Does LDUK Mean To Me?
As part of LDUK’s birthday celebrations, I wanted to share what the community means to me, and how it’s helped shaped my life. LDUK means the world to me. It was a place that called me family before I really understood my health or anything about Lyme disease. There were […]Read more
Meet The Team: Julia Knight
In 1999 I was bitten by ‘something’ while on holiday at Center Parcs near Thetford, Norfolk. Despite being a senior paediatric nurse I had no knowledge of Lyme disease. Over the next few months I became progressively unwell resulting in me being unable to get out of bed, sleep, swallow […]Read more
5 Years of Patient Support – the LDUK Online Community
Over the past 5 years, the Lyme Disease UK’s Online Community has grown from two founding patients, Natasha Metcalf and Louise Dean, to a community of over 9,500 members from across the UK and further abroad. Whilst it is wonderful that so many patients and their loved ones who are […]Read more
Charity Projects 2018
2018 has been an incredible year for LDUK. Our community has grown bigger by the day and we continue to be inspired by all the hard work and determination we see. So much has been going on, from new local support groups popping up to the fantastic efforts lobbying support […]Read more
May is Lyme Disease Awareness Month – Take Part by Helping your Community to ‘Wake Up to Lyme’!
LDUK wants to prevent further people being infected with Lyme disease this Summer. Our ‘Wake Up to Lyme’ campaign aims to raise awareness on how to prevent tick bites, how to safely remove ticks and the importance of early treatment for those people who become unwell following a bite. You can […]Read more
The True Cost of Lyme disease – a personal account from Julia Knight
In 1999 I was a highly qualified Specialist Nurse Practitioner, Paediatric Nurse. I had spent the last 12 months setting up a Community Children’s Nursing Service in Lincolnshire – the first in that part of the UK. I was due to start my Master’s Degree in NHS Management, and was […]Read more
Scottish Lyme Disease Rally May 2017
Lorraine Murray shares her account of the day with LDUK: “Scottish Lyme disease sufferers held their very first awareness Rally in Edinburgh on 24th May 2017 this year. All in attendance were ordinary people that this disease has sadly affected. Many brought along family members to show their support and […]Read more