The Mystery of Lyme Disease – Dr Pugliese

Diagnosing and treating this patient is a labor-intensive effort. It takes patience and understanding in order to be successful. Unfortunately for many in my profession, both are in short supply. Mix that with not fully understanding how to view the data before them, and many patients are dismissed and labeled as kooks. It’s time to be less dismissive and learn to look and listen better.

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New ILADS Guidelines

The International Lyme and Associated Diseases Society (ILADS) have produced new evidence-based guidelines for the management of patients with Lyme disease. The guidelines address three clinical questions; The usefulness of antibiotic prophylaxis for known tick bites The effectiveness of erythema migrans treatment The role of antibiotic retreatment in patients with persistent manifestations of […]

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Question of Perspective – Laura Brown

Many thanks to Laura Brown for this post showing how important it is to keep perspective on our illness and to see the positives. You can read more of her blog over at  http://lauralyme.tumblr.com which also links to her fundraising campaign for Lyme disease treatment.   A Question of Perspective   […]

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Worldwide Lyme Disease Protests – UK 2014

Over the weekend of 16th and 17th May, the UK hosted two protests in Manchester and London. These events were part of the Worldwide Lyme Disease Protests to raise awareness and protest against the flawed IDSA Lyme disease diagnostic and treatment guidelines which influence UK policy on Lyme disease. Despite […]

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NHS National Referral Clinic To Close

The NHS National Lyme Disease Referral clinic that has been open for just 6 months has closed. We had heard reports from patients of the clinic that the service was going to be discontinued in its present form from February 2014 onwards. In late February we asked Dr Dryden what […]

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Moving the goal posts – Sophie Grace Kellaway

Moving the goal posts by Sophie Grace Kellaway Recently I’ve noticed that as I’ve been recovering, I’ve been changing my targets for wellness. By moving the goalposts without even realising, I’ve been feeling like I’ve not been making progress. Only when I’ve stopped to think about the real changes can […]

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You never know – Jas Matthews

Happy new year! Our next guest blog is from UK patient and LDUK group member Jas Mathews and talks about living with chronic Lyme disease and how she meets the unique challenges it brings. Read more of her blog here http://lojango.blogspot.co.uk/. If you have a blog you would like featured, please […]

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Group Questions Answered

Lyme Disease UK submitted a document containing 59 questions for the staff at the Rare & Imported Pathogens lab and the new Lyme Disease Referral Clinic at Winchester before the PHE Lyme disease conference in October 2013. These were compiled by our discussion group members in collaboration. We hoped that […]

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PHE Lyme Disease Conference 2013

Public Health England held a Lyme disease conference in London on 9th October 2013. Speakers included Dr Tim Brooks from the Rare & Imported Pathogens Lab, Dr Matthew Dryden who is running the new national Lyme disease referral clinic in Winchester, Dr Alastair Miller Infectious Disease consultant, The Countess of […]

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