PHE conducted a very last minute open day on 25th March 2015, changing the date with less than two weeks’ notice. The few people who did manage to make it reported back from the meeting and the following document is now available giving detailed information on the event. Sadly, many […]
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Lyme Disease UK would like to say a big congratulations to all the organisers and speakers at the Lyme Disease Forum in the Houses of Parliament in London on 19th January 2015. It was a very well attended event with a great mixture of doctors, scientists and patients. The presentations were […]
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Elaine Griffin from Ireland has been suffering with poor health for 24 years. Here she talks about getting an eventual Lyme disease diagnosis, her fundraising and creating her awareness music single ‘Once Bitten Twice Shy’ which includes tick prevention information and a tick remover. **************************************************** Hi Everyone, My name is Elaine Griffin […]
Read moreILADS hosted its Annual Lyme Disease Conference in Washington DC, USA on 10-12th October. Twitter was ablaze with live updates from the event which LDUK tuned into and according to @DrDanielCameron, the current president, ILADS’ membership has ‘more than doubled in past 3 years’ which is an exciting prospect for […]
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Diagnosing and treating this patient is a labor-intensive effort. It takes patience and understanding in order to be successful. Unfortunately for many in my profession, both are in short supply. Mix that with not fully understanding how to view the data before them, and many patients are dismissed and labeled as kooks. It’s time to be less dismissive and learn to look and listen better.
Read moreThe International Lyme and Associated Diseases Society (ILADS) have produced new evidence-based guidelines for the management of patients with Lyme disease. The guidelines address three clinical questions; The usefulness of antibiotic prophylaxis for known tick bites The effectiveness of erythema migrans treatment The role of antibiotic retreatment in patients with persistent manifestations of […]
Read moreMany thanks to Laura Brown for this post showing how important it is to keep perspective on our illness and to see the positives. You can read more of her blog over at http://lauralyme.tumblr.com which also links to her fundraising campaign for Lyme disease treatment. A Question of Perspective […]
Read moreOver the weekend of 16th and 17th May, the UK hosted two protests in Manchester and London. These events were part of the Worldwide Lyme Disease Protests to raise awareness and protest against the flawed IDSA Lyme disease diagnostic and treatment guidelines which influence UK policy on Lyme disease. Despite […]
Read moreThe NHS National Lyme Disease Referral clinic that has been open for just 6 months has closed. We had heard reports from patients of the clinic that the service was going to be discontinued in its present form from February 2014 onwards. In late February we asked Dr Dryden what […]
Read moreMoving the goal posts by Sophie Grace Kellaway Recently I’ve noticed that as I’ve been recovering, I’ve been changing my targets for wellness. By moving the goalposts without even realising, I’ve been feeling like I’ve not been making progress. Only when I’ve stopped to think about the real changes can […]
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