• Welcome to Lyme Disease UK, a registered charity founded by Lyme disease patients. We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors.

Welcome to Lyme Disease UK

Online Support

Our Online Community on Facebook is a friendly space for you to ask questions, share experiences, and find support. You can chat to people who understand what you are going through, and many of our community members become good friends.

The group is private, so only members can see the posts and comments, allowing people to talk more freely about their thoughts and experiences with Lyme disease and the associated factors. It’s a welcoming place full of support, advice and friendships. Founded in 2013 by patients, Natasha Metcalf and Louise Dean, the group averages 200 new member requests each month. Over 60% of our members are from the UK and although our group members predominantly discuss issues relating to UK patients, we warmly welcome overseas patients and have members from every continent. Our Online Community is moderated by a team of volunteer administrators, all with their own experience of Lyme disease.

Join below or visit www.facebook.com/groups/lymediseaseuk.

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News From the LDUK community

More fundraising!

We’ve had a good year for fundraising and are so grateful to all those that commit their time and resources towards helping Lyme Disease UK achieve our goals. Did you know you can fundraise for us through Facebook? This year we’ve had three birthday fundraisers totalling a wonderful £812. Thank […]

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Raising Awareness Amongst Medical Professionals

Lyme Disease UK are thrilled to have landed two exceptional awareness-raising opportunities amongst the medical community. Taking place on the 13th and 14th of October is the Best Practice Show 2021. This event is a big hit for the UK’s primary care and general practice community. The event expects to […]

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Tick warning attached to single tree in woodland

Lyme Disease Online Awareness Talks

Prior to the pandemic, LDUK volunteers were attending community groups and organisations to provide people with Lyme disease and tick bite prevention awareness talks. Like so many others during the last 18 months we’ve had to make some changes! Our talks went online. This was a new way of working […]

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Monia Selfie

My Lyme Story: Monia-Allah T Al-Haidary

I have been going to the doctors for two years now with various symptoms. Brain fog, dizziness, light-headedness, and, as charmingly scrawled on my notes time and time again, TATT (tired all the time). From October 2020, at the height of the pandemic, I had a urinary tract infection followed […]

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Julia at the Bushcraft Show 2021

The Bushcraft Show 2021

Lyme Disease UK were very happy to be invited to attend the 2021 Bushcraft show at the Chillington Hall Estate, in the West Midlands. Our Press & Community Outreach Manager, Julia Knight, spent the day raising awareness of Lyme disease with the Bushcraft community and other members of the public […]

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Christmas Card Competition

Christmas Card Competition

Yes, you read that right! It’s that time of year again where we start looking at designs for our charity Christmas cards, and this year we thought it would be a great idea to ask the Lyme community for a hand. Whether you’re an illustrator or graphic designer, or you […]

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Photograph of Katharine Rhodes

My Lyme Story: Katharine Rhodes

The first symptom I can recall is the drop in my energy levels around 2014/15. I stopped wanting to do the things I liked so I went to my GP and had different tests, but everything returned normal. The fatigue slowly got worse. In 2017/18 further symptoms appeared. The first […]

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Dr Jemsek Portrait Image

Online Seminar: An Evening with Dr J

This seminar with Dr. Joseph G. Jemsek took place on Friday 30 July and was facilitated by Julia Knight, LDUK’s Press and Community Outreach Manager. Dr Jemsek shared his extensive knowledge about Lyme Borreliosis and co-infections as well as handy self-help tips! Download the presentation slides here. Dr. Joseph G. […]

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Stock image of sick woman

Our Daughter and Lyme Disease

Lyme Disease has changed everything for my family. Our teenage daughter has been very sick since 2018. She became increasingly ill over a period of time with strange and seemingly unrelated symptoms, something most Lyme patients can relate to. School would call us and say *Anna was feeling faint and […]

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