Welcome to Lyme Disease UK, a registered charity founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our Online Community, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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Children’s Poster Competition Winner!

We are delighted to announce that the winner of LDUK’s 2019 children’s poster competition is Evangeline Baxter-Fox who is 7 years old. Well done Evangeline for creating such an impactful poster with a really strong message to help people #WakeUptoLyme and to Moyles Court School for embracing Lyme disease awareness. […]

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How Does The Weather Affect Our Symptoms?

Summer 2019 has generally been good to us but this winter is set to be another harsh one. With the rollercoaster of the seasons and a climate that is continuously changing, how is our health being affected? Many of us take holidays abroad in order to chase the sun and […]

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How Does Your Illness Make You Feel?

This question is heartbreaking, and I know for many people, it sparks SO many different emotions which are often, understandably, negative. When I asked this question in our Online Community, the main responses were: embarrassed, angry and let down. We feel embarrassment because we don’t want people seeing us as […]

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IDSA Guidelines: LDUK Supports Ad Hoc Patient-Physician Coalition

LDUK has added its name to the US-based Ad Hoc Patient-Physician Coalition to support their 58-page comments relating to issues surrounding the new Infectious Disease Society of America’s (IDSA) guidelines for Lyme disease which fail to use the GRADE system for ranking the quality of the evidence on which they […]

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An EM rash may appear in some cases

Lyme disease and the EM rash

An erythema migrans otherwise known as an EM, is the rash associated with Lyme disease. The rash does not occur in every case of Lyme disease but if a patient does present with an EM rash then no blood test is required and treatment should be prescribed immediately as per […]

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New Health and Safety Regulations for Holiday and Home Parks

It isn’t easy these days to drive change. Don’t we know! However, through our stubborn hearts, grit and determination are helping people become more aware of Lyme. We are building the foundations for education and with our courage for speaking out about our own stories, people begin to try and […]

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What Do Our Symptoms Cause Us To Do That People May Not Understand?

Lyme disease causes many different, puzzling symptoms. How can others possibly understand? It is a daily battle for so many of us to understand and we find ourselves becoming increasingly upset and irritable when others can’t seem to understand either. As the seasons change, we face new symptoms that we […]

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