*LDUK is operating as normal during Covid-19, as all of our volunteers work remotely. It’s important to follow all Government advice and to take precautions to avoid tick bites during permitted outdoor exercise. If you’ve been bitten by a tick and notice a rash or you feel unwell following a bite, be sure to contact your GP immediately and find out what remote help is available if your GP surgery is closed due to Covid-19. Some symptoms of Lyme disease are similar to Covid-19. Learn about the differences here*

Welcome to Lyme Disease UK, a registered charity founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our Online Community, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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Efforts to Engage Local Councillors in Lyme Awareness

LDUK community member Mandy, who is living with long term Lyme disease symptoms, alongside her husband, and potentially has other family members affected, has not let that stop her from trying to build health awareness of the condition and try to generate publicity, whilst maintaining her anonymity. Mandy is in […]

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The Impact of Covid-19 Lockdown by Julia Knight

Many people who are already chronically ill with Lyme disease or other illnesses were bed-bound or housebound before the Covid-19 restrictions and lockdown became part of daily life. If Lyme disease is left untreated, it can result in long term damage to the joints, heart and nervous system and this […]

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2020 Tour De Kaims Cycle Challenge

A huge thank you to the Kaims community for organising this initiative and for choosing LDUK as their chosen charity for 2020’s Tour De Kaims Cycle Challenge! A special thank you to Alan Armstrong for setting up the event’s fundraising page and we hope you all have a wonderful day! […]

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‘Living in the Lymelight’ by Jenny Hodges

Hi, I’m Jenny, I’m 29 and live in London. I’m so excited to announce that I have just published a book about my fight with chronic Lyme disease! I’ve often been told I should write my story and not being a keen writer, I have always put it off. However, […]

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Dr Rachel Taylor – Expert Q&A

Dr Rachel is a neuro-psychologist specialising in trauma recovery and wellbeing in those with chronic or neurological conditions. Her research and development of wellbeing strategies has come from her personal experience and working with those most affected. She is passionate about developing strategies and programmes focused on creating the best […]

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Coronavirus or Lyme Disease?

Coronavirus is likely to be at the forefront of our minds over the coming months. Any new flu-like symptoms may make us consider whether we have been infected with the virus.  Lyme disease can be contracted by the bite of an infected tick and symptoms of acute Lyme disease may […]

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Wake Up to Lyme Campaign 2020

2020’s Lyme Disease Awareness Month is slightly different this year due to the devastating Covid-19 situation which is impacting everyone’s lives. It’s so important that everyone follows the most up to date government advice on Covid-19 and social distancing. LDUK’s aim is to help take pressure off the NHS by […]

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Enjoy the Outdoors Safely – a short animation from LDUK

  This stunning animation was created by the very talented RoPu Chen, Adam Duncan and Cedric Fangeat. Cedric is a member of our Online Community as has kindly shared his story with us: “I was diagnosed with Lyme disease in November 2017. The story behind having a diagnosis for Lyme […]

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Notes for Editors

Lyme Disease UK would like to connect with journalists from all media outlets and to help out with features on Lyme disease. We can put you in touch with Lyme disease sufferers, doctors and other experts to aid your work. Patient stories and photos available.  Facts and stats are available on […]

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