Welcome

Welcome to Lyme Disease UK, a support organisation founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our online support group, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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Featured

Dr Carsten Nicolaus – Expert Q&A Video

After finishing his academic education at two German Universities (Regensburg and Munich) and medical training, Dr. Carsten Nicolaus opened his own GP practice in Augsburg in the South of Germany. Only a few weeks after the opening of the practice, he was confronted with problems of tick-borne diseases, particularly Lyme […]

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RCGPs’ GP Workshop on Lyme Disease

The Royal College of GP’s Lyme disease Spotlight Project which is funded by the charity Lyme Disease Action and the International Lyme and Associated Diseases Educational Foundation is holding a free GP workshop on November 12th 2018 in Birmingham on “Lyme Disease, PoTS, Syncope and IBD – easily missed diagnoses”. […]

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Avril Lavingne’s Song Inspired by Lyme Hits the Charts!

Singer Avril Lavigne has released a new song ‘Head Above Water’ which is the first music she has released in 5 years because she has been battling Lyme disease. The track is climbing the iTunes charts and the powerful lyrics will undoubtedly resonate with the Lyme community and beyond. Avril […]

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How Long Did It Take You to Get Diagnosed?

Lyme disease is still widely misunderstood by the medical profession. Through our awareness work, it is our wish that people are diagnosed more quickly so that they don’t miss the crucial window for early treatment but so many members of our Online Community have suffered for years on end, often […]

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Living in the Moment with Lyme

What is the most challenging part of living with Lyme disease? Let’s face it, there are enough physical symptoms that would be deserving answers to this question. Feeling so fatigued that lifting your arms to brush your hair is a struggle, irregular heartbeats thumping you from the inside your chest, […]

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Sunshine 4 Lyme Campaign by Kelly Williams

Hi my name is Kelly Williams and last year I started a campaign called Spreadalittlesunshine.  I wanted to raise £60,000 for someone called Sol who lives in Argentina and suffers from chronic Lyme disease. I didn’t even know Sol, she was a friend of a friend who I was supposed […]

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