• Join the LDUK WOW Challenge

Welcome to Lyme Disease UK

Online Support

Our Online Community on Facebook is a friendly space for you to ask questions, share experiences, and find support. You can chat to people who understand what you are going through, and many of our community members become good friends.

The group is private, so only members can see the posts and comments, allowing people to talk more freely about their thoughts and experiences with Lyme disease and the associated factors. It’s a welcoming place full of support, advice and friendships. Founded in 2013 by patients, Natasha Metcalf and Louise Dean, the group averages 200 new member requests each month. Over 60% of our members are from the UK and although our group members predominantly discuss issues relating to UK patients, we warmly welcome overseas patients and have members from every continent. Our Online Community is moderated by a team of volunteer administrators, all with their own experience of Lyme disease.

Join below or visit www.facebook.com/groups/lymediseaseuk.

News From the LDUK community

My Lyme Story: Katharine Rhodes

The first symptom I can recall is the drop in my energy levels around 2014/15. I stopped wanting to do the things I liked so I went to my GP and had different tests, but everything returned normal. The fatigue slowly got worse. In 2017/18 further symptoms appeared. The first […]

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Online Seminar: An Evening with Dr J

Join us on Zoom for a free one hour seminar with Dr. Joseph G. Jemsek who will be sharing his extensive knowledge about Lyme Borreliosis and co-infections as well as handy self-help tips! Date: Friday 30 July Time: 7pm – 8pm Location: Zoom Register your place for FREE via Eventbrite. […]

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Our Daughter and Lyme Disease

Lyme Disease has changed everything for my family. Our teenage daughter has been very sick since 2018. She became increasingly ill over a period of time with strange and seemingly unrelated symptoms, something most Lyme patients can relate to. School would call us and say *Anna was feeling faint and […]

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Online Seminar: Shame, Stigma, and “Unexplained” Symptoms

This online seminar with Katharine Cheston took place on Monday 12 July from 7pm to 8pm and was facilitated by Julia Knight, LDUK’s Press and Community Outreach Manager. Download the slides from this presentation. Katharine is a PhD researcher at the Institute for Medical Humanities, Durham University. Her research, funded […]

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LDUK’s WOW Challenge – Walk Or Wheel! 

Get involved with our WOW Challenge this summer by walking 20km or wheeling 100km! Take part from July to September and help raise funds for LDUK. Donations are crucial to the work we do raising awareness of Lyme disease and supporting our patient community. If you or someone you know […]

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Half Ironman Fundraiser for LDUK

Nick Clarke has been in touch with us to share his story and let us know he’ll be raising money for LDUK on behalf of his wife, Sophie, who lives with Lyme disease. You can sponsor him via his Virgin Money Giving page. Thank you to Nick, James and Beth […]

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My Lyme Story: Jeff McCarthy

It was May 2013 when I first knew something was wrong. I had failed to complete a 5k race which had never happened to me before. I had to stop at the 3k mark as I just didn’t feel right and it wasn’t the normal type of fatigue you might […]

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What happens when doctors don’t have all the answers?

Katharine Cheston is a PhD researcher at the Institute for Medical Humanities, Durham University. Her research, funded by the Wellcome Trust, focuses on experiences of illness that can be considered to be ‘medically unexplained’. She has previously volunteered for charities and organisations working with people living with complex, poorly-understood medical […]

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My Lyme Story: Grace Ashley-Stokes

Scattered throughout the past few years, I’ve had strange signs and symptoms that something wasn’t right with my health. I had countless doctor appointments for bizarre symptoms that even they couldn’t find a clear answer for. In winter 2019, my health took a noticeable dip. I tried hard to ignore […]

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My Lyme Story: Andrew McGuinness

In 2010 Andrew had secured a two-book deal and just published his first novel, A Portrait of the Arsonist as a Young Man; David Bowie had allowed him to use his lyrics in the narrative. He’d won international short story prizes and an award for his work supporting new writers in Kent. He taught creative writing […]

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