Welcome to Lyme Disease UK, a registered charity founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our online support group, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

Continue reading


QM Cheerleading event

QM Sapphires Cheerleading Team Support LDUK!

Lyme Disease UK received a donation this month from the QM Sapphires cheerleading team of Queen Margaret University, Edinburgh. LDUK community member, Janey Cringean, went along to a special event to accept the donation on our behalf. She told us, “The event was an inter-university cheerleading competition involving different universities […]

Read more

Wake Up to Lyme Downloadable Awareness Pack

Wake Up To Lyme Campaign Posters (click to download, print and share!) Please note that these materials are for information purposes only and to raise awareness locally. We retain the copyright and under no circumstances can they be used by for-profit organisations who will financially benefit from the distribution of […]

Read more

LDUK Achieves Charity Status!

We are delighted to announce that Lyme Disease UK is now a registered charity (1182212), thanks to all the hard work of our volunteers and generous donations from the Lyme community, general public and sponsors. Some of the benefits of this exciting development are that we can receive gift aid on […]

Read more

What Do You Say to Friends When You Have to Cancel Plans?

Having to cancel plans on a regulalar basis is something people with a chronic illness often have to do, much to their disappointment and to the disappointment of others. I decided to ask our Online Community how they explain to people when they have to pull out of an arrangement […]

Read more

‘Hummingbird’ by Laura C. Brown

Hummingbird by Laura C Brown Having my song included on the LDUK website is something of a surreal moment for me, and feels like a bit of a landmark. 6 years ago, I first found LDUK, and along with the many friends and family that have helped me, I have […]

Read more

Meet The Team: Rachel Bowerman

I’ve been volunteering with LDUK since 2016, and although I wish an organisation like ours wasn’t needed, I do love what I do. Raising awareness of Lyme disease and tick bite prevention has given me a sense of purpose, it makes me feel as though my experience hasn’t been in […]

Read more

In the ‘Lyme Light’ by Sophie Ward

In The ‘Lyme’ Light A Journey of Acceptance and Rediscovery By Sophie Ward Order here We are delighted to announce that LDUK Admin Sophie Ward’s debut autobiography is now available to order. Below, Sophie discusses how her book came to be: “My book is my personal journey through life and […]

Read more

Pfeiffer’s TEDx Talk: A scourge of ticks – armed, dangerous and global

Mary Beth Pfeiffer, author of “Lyme: The First Epidemic of Climate Change,” is a leading investigative reporter on Lyme and other tick-borne diseases.  She has been investigating Lyme disease since 2012 and the Poughkeepsie Journal has published more than 12 installments on the subject. In her recent “TEDx Talk,” she discusses […]

Read more
1 2 3 23