Welcome to Lyme Disease UK, a registered charity founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our Online Community, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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Manchester to Liverpool Ultra Marathon

LDUK is delighted to announce that Colin Ratcliffe and his team of runners are running the 50 mile Manchester to Liverpool Ultra Marathon in aid of LDUK on 10th April. Here, Colin shares his motivation to undertake this impressive feat. We wish Colin all the best – we are so […]

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Lyme Disease and Female Identity

Today is International Women’s Day; a global day to celebrate the social, economic, cultural and political achievements of women. On this special day, Lyme Disease UK would like to recognise the female members of our online community, who make up a staggering 78% of our numbers! This high percentage is reflective […]

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Lyme Disease and Fertility

Facing a diagnosis of Lyme disease brings with it many unique challenges. The most immediate questions raised by a female patient will likely be “How will I get better?” or “What can I do to manage my symptoms?”, but once the shock of this initial period has eased, a patient […]

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Lyme Disease UK Celebrates World Book Day!

Today is World Book Day, a charity day being held across the UK to celebrate books and reading. With so many uncertainties surrounding Lyme disease, patients can often find themselves becoming their own advocates and reading books about Lyme disease in order to gain the knowledge and power to arm […]

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Forty-Five F45 Gym Classes in 31 days!

A huge thank you to Mark Pembroke and Harry Cambell Lamerton who are raising money for LDUK. Please support them here if you can! “My name is Mark, I’m 31 years old and live in North London with my girlfriend Hannah. I love Hannah, she is an absolutely amazing person […]

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Coast 2 Coast 2020

On 18th – 21st August 2020, Diane and Dawn from Rothley Park Golf Club will be cycling 150 miles from Whitehaven in Cumbria to Teignmouth in Devon to raise money for Lyme Disease UK, which is the chosen charity of the Lady Captain, Jenny Piecha, at the golf club. Please […]

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Isolation, Judgement and Suicide by Suzanne Keenan

If you are affected by this story you can call the Samaritans for free on 116123 or for children and young people and anyone concerned about them, the Professional Suicide Prevention Service Hopeline (PAPYRUS) on 0800 068 41 41 TV presenter Caroline Flack died this month.  It triggered something very […]

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Rothley Park Golf Club Charity Lunch

On 18th February 2020, LDUK Chair Natasha Metcalf was invited to the Rothley Park Golf Club Ladies Charity Lunch hosted by Lady Captain, Jenny Piecha, whose daughter Samantha suffers from Lyme disease. Jenny and the club have very kindly chosen to support Lyme Disease UK this year. Natasha, Jenny and […]

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LDUK Attends Duke of Edinburgh’s Award Conference

Recently LDUK were invited to attend The Duke of Edinburgh’s Award Central England Regional Conference at Eastwood Hall in Nottingham. Jackie Bull, who is a Regional Director at DoE, was very keen for LDUK to be present at the event. Jackie explained to us: “The Duke of Edinburgh’s Award recognises […]

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