Welcome to Lyme Disease UK, a registered charity founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our online support group, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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RCGP Lyme Disease Toolkit Launches!

The Royal College of General Practitioners has launched its new Lyme Disease Toolkit which should prove to be a highly useful and accessible resource for GPs, other medical professionals and the general public wanting to learn more about the disease. The Toolkit was developed by Dr Anne Cruikshank (RCGP Clinical […]

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Lighting up Lancashire for Lyme by Sophie Ward

LDUK has kicked off Lyme Disease awareness month with a bang. Across the country with the work of the LDUK team and members of our Online Community, we have been able to get major UK landmarks to glow green in support of Lyme disease awareness which is just incredible and […]

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Lyme Disease Awareness Month 2019 has got off to a fantastic start with lots of buildings around the country being lit up in green to help us mark this year’s campaign. Thank you to everyone involved in arranging these landmark light-ups and don’t forget to share your photos with us […]

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Living with Lyme

Patient stories of recovery, new enterprises and enjoying a purposeful life following Lyme treatment.

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LDUK Awareness Animation

This stunning animation was created by the very talented RoPu Chen and Cedric Fangeat. Cedric is a member of our Online Community as has kindly shared his story with us: “I was diagnosed with Lyme disease in November 2017. The story behind having a diagnosis for Lyme disease is far […]

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LDUK Emails 10,000 Schools For Lyme Awareness Month!

LDUK used some of the charity funds to purchase the data for 10,000 schools in the UK (both primary and secondary) and sent out the following email to the Headteachers on 1st May to mark the start of Lyme awareness month. You can help us reach more schools by sharing […]

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‘Under the Ben’ Fundraiser

A huge thank you to Mark Bell and Scott Cameron who took on the challenge of the ’10 Under the Ben’ mountain biking race in Scotland and smashed their target of raising £1000 for Lyme Disease UK by managing to raise over £1100! A big thank you also goes to […]

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