Welcome

Welcome to Lyme Disease UK, a support organisation founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our online support group, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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Featured

Lyme Disease: Where Am I At? by Rachel Bowerman

LDUK Social Media Manager, Rachel Bowerman, shares her latest post with us from her blog Blah, Blah, Blog. Ten years have now passed since the initial onset of my Lyme disease symptoms, and I’ve been on a learning journey since I discovered its presence early last year. Lyme disease and […]

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‘Unrest’ – UK Screenings

An Award-Winning Film about ME Lyme disease and ME patients often live in a parallel universe. There are so many overlaps between the two conditions. How many ME patients have Lyme disease? How many of the associated co-infections and viruses which can overwhelm Lyme disease patients’ immune systems also affect […]

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Janey and Lorraine Scottish Parliament for Lyme disease awareness

Scottish Parliament Public Petitions Committee

On 14th September 2017, LDUK members, Janey Cringean and Lorraine Murray presented to the Scottish Parliament Public Petitions Committee on behalf of Tick-Borne Illness Campaign Scotland regarding their petition “PE01662: Improve Treatment for Patients with Lyme Disease and Associated Tick-borne Diseases“. Janey gave a five minute introductory presentation on Lyme […]

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NICE logo

NICE Guidelines – What’s Next?

In 2015, LDUK registered as stakeholders in the process. Representatives from LDUK attended a stakeholder meeting in February 2016 and submitted our comments on the draft scope. NICE completes five steps before new guidelines are published. The Lyme disease guidelines are currently at step 3. The details of the steps […]

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Samantha Ash with Matt Dawson

Matt Dawson Speaks Out

Matt Dawson with LDUK Spokesperson, Samantha Ash On 21st August, rugby star Matt Dawson spoke out about his Lyme Disease diagnosis and subsequent heart surgeries. Dawson sustained a tick bite while out in a London park with his family. Talking initially to Radio Five Live he described his symptoms, the […]

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Kestrels FC supporting LDUK

Maidstone Kestrels U11 Fun Day!

On 26th August 2017, over 800 people turned up for the football team’s fun day in beautiful sunny weather. Half of the proceeds from the day went to LDUK. Ann from LDUK and Adam Wearing the LDUK logo, Adam Keil, the organiser said, ‘We are just glad and proud to […]

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Sophie Ward

Finding Worth When Suffering by Sophie Ward

This month’s guest blogger is Sophie Ward, who is the author of the blog Sophantastic  in which she shares her experiences and reaches out to people with food intolerances, depression, chronic pain, nerve damage, chronic illness, Lyme Disease, co-infections, anxiety and low-self esteem. Her blog is full of stories and tips […]

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Hannah Grech with her artwork

Children’s Poster Competition

LDUK hosted a children’s Lyme disease awareness poster competition as part of our school awareness pack campaign. We are delighted to announce the winner and the runners up! WINNER:  Hannah Grech, 10 years old St. Mellion C of E School Saltash RUNNERS UP: Laura Miles 9 years old St. Mellion C […]

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Judy Rocher and Rebecca Cotterall – Expert Q&A Video

On 10th August 2017, LDUK was delighted to welcome Judy Rocher and Rebecca Cotterall, from the London Clinic of Nutrition, to take part in a Q&A session with us, answering pre-submitted questions from group members. Thank you so much for joining us and for sharing your treatment approach and knowledge with us! […]

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