Welcome to Lyme Disease UK, a registered charity founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our Online Community, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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NICE Lyme Disease Quality Standard Published

Following the publication of the NICE guideline for Lyme disease last year, a Quality Standard for Lyme disease has been produced. You can find the Quality Standard here. LDUK were involved in the consultation process, providing stakeholder comments. We sincerely hope that this Quality Standard along with the NICE guideline […]

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Wake Up to Lyme 2019 Campaign Success!

May 2019 saw the nation ‘Wake Up to Lyme’ with our most successful awareness campaign yet. Thank you so much to everyone who took part! LDUK sent out more posters and leaflets in the first week of awareness month than we did during the whole campaign last year! A whopping […]

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Laugh With Brittany Marie

Brittany will be holding a live laughter yoga class in LDUK’s Online Community on 22nd June at 6pm Hey there! My name is Brittany, I’m 24 years old, and I want to share my journey of recovering from Lyme disease and other chronic illnesses with the hope that it can […]

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LDUK Wins £1000 in Ecclesiastical’s ‘Movement for Good’ Awards!

Press Release Lyme Disease UK has won a £1,000 Movement for Good award thanks to nominations from the public. Lyme Disease UK was nominated to win a £1,000 boost as part of specialist insurer Ecclesiastical’s Movement for Good awards, which is giving £1million to charities this summer. This generous donation […]

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A Tale of Desperation, Depression and New Dawns by Jeff McCarthy

As a sufferer with chronic #LymeDisease since mid-2013, LDUK asked me to share my story. The more we can do to raise awareness during #LymeAwarenessMonth, the better. This is my personal contribution to #WakeUpToLyme. I hope it helps anyone, be they a fellow sufferer, or a family member or friend […]

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RCGP Lyme Disease Toolkit Launches!

The Royal College of General Practitioners has launched its new Lyme Disease Toolkit which should prove to be a highly useful and accessible resource for GPs, other medical professionals and the general public wanting to learn more about the disease. The Toolkit was developed by Dr Anne Cruikshank (RCGP Clinical […]

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Lighting up Lancashire for Lyme by Sophie Ward

LDUK has kicked off Lyme Disease awareness month with a bang. Across the country with the work of the LDUK team and members of our Online Community, we have been able to get major UK landmarks to glow green in support of Lyme disease awareness which is just incredible and […]

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Lyme Disease Awareness Month 2019 has got off to a fantastic start with lots of buildings around the country being lit up in green to help us mark this year’s campaign. Thank you to everyone involved in arranging these landmark light-ups and don’t forget to share your photos with us […]

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