Welcome to Lyme Disease UK, a registered charity founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our Online Community, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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Breaking the Stigma of Late Lyme Disease

Breaking the stigma of late Lyme disease There’s nothing quite like lived experience as a catalyst for igniting passion for change.   I feel completely surrounded by this passion as part of the LDUK team and member of the wider Lyme community. Despite ill-health, the care for other patients and […]

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Online Shopping: Raise Money for LDUK While you Shop!

LDUK is now registered with easyfundraising and Amazon Smile so if you feel like supporting us as you do your shopping online, here’s everything you need to know and we’d be so grateful! AmazonSmile: AmazonSmile is the same Amazon you know. Same products, same prices, same service. Amazon donates 0.5% […]

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School Cake Sale in Aid of LDUK!

A huge thank you goes out to Isabella Doyle who very kindly organised a cake stall at her school, Northgate Primary School in Bishop’s Stortford with the help of her sister Eva, family and friends. They raised a whopping £200 and also raised awareness of Lyme disease and how to […]

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Lyme Disease and Travel

For many people, travel is a healer, a motivator, a goal and the best way to expand horizons. For those who are chronically ill,  it can represent a struggle with uneasiness about how symptoms will be manageable, how pacing will be possible throughout the trip and how dietary requirements will […]

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Raising Awareness at Bransby Horses Rescue and Welfare

After relocating back from the Middle East in late 2017, my husband and I moved to the lovely village of Sturton-By-Stow just outside of Lincoln. Being an avid Lyme disease awareness raiser & Sturton being semi rural,  I immediately contacted the local Parish Council to ask if they would put […]

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Living with Hidden Disabilities

Living with Lyme disease is no small challenge, especially for those of us dealing with late-stage Lyme. We have to fight for the correct diagnosis and then fight for the adequate treatment. This complex illness requires us to be medical detectives, sourcing the most suitable practitioners to help us along […]

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LDUK’s Reaction to Lyme Disease Being Chronic Fatigue Syndrome

2019 has seen some significant progress in the field of Lyme disease with overall awareness increasing, media coverage increasing, the RCGP releasing a Lyme disease toolkit, the NICE Quality Standard being published following the 2018 guideline, charities working together to give a louder voice to sufferers and LDUK’s highly successful […]

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