Prior to 2016 I was fit, healthy, very active and worked long hours in a career I loved. I did charity events including running the London Marathon and cycling from London to Paris. In 2016, I had an amazing year away travelling – I climbed Machu Picchu, swam in the […]
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LDUK is delighted to offer free access to the new film, ‘Blackbird – A Story On Lyme Disease’! Blackbird is a new British film following a young woman and her ongoing battle with Lyme disease. It’s a short documentary lasting around 30 minutes, and it covers a broad range of […]
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In the summer of 2017 whilst pregnant with Gabriella, I was, as we later found out, bitten by a tick. At the time I experienced ongoing flu-like symptoms and didn’t notice a bull’s-eye rash. When I saw one of the GPs at my surgery, I was told what I had […]
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I was a healthy, young 47-year-old enjoying life. A party animal, I was always first on the dance floor and last to leave until one morning I awoke with every bone and muscle hurting, an intense, deep crushing pain. Months went by without improvement, in fact I got worse. My […]
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I have been going to the doctors for two years now with various symptoms. Brain fog, dizziness, light-headedness, and, as charmingly scrawled on my notes time and time again, TATT (tired all the time). From October 2020, at the height of the pandemic, I had a urinary tract infection followed […]
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The first symptom I can recall is the drop in my energy levels around 2014/15. I stopped wanting to do the things I liked so I went to my GP and had different tests, but everything returned normal. The fatigue slowly got worse. In 2017/18 further symptoms appeared. The first […]
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It was May 2013 when I first knew something was wrong. I had failed to complete a 5k race which had never happened to me before. I had to stop at the 3k mark as I just didn’t feel right and it wasn’t the normal type of fatigue you might […]
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Scattered throughout the past few years, I’ve had strange signs and symptoms that something wasn’t right with my health. I had countless doctor appointments for bizarre symptoms that even they couldn’t find a clear answer for. In winter 2019, my health took a noticeable dip. I tried hard to ignore […]
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In 2010 Andrew had secured a two-book deal and just published his first novel, A Portrait of the Arsonist as a Young Man; David Bowie had allowed him to use his lyrics in the narrative. He’d won international short story prizes and an award for his work supporting new writers in Kent. He taught creative writing […]
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My Lyme story started in February 2017 when I noticed a small, black speck on the outside of my thigh. I tried to brush it off but it seemed to be attached so I pulled at it and what came away was something about the size of a pin head […]
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