Model Michelle De Feo has been busy raising awareness by teaming up with Front magazine, fellow models, photographers and make up artists to create a warrior inspired Lyme disease campaign. Thank you so much for including Lyme Disease UK and to everyone who worked hard on this project! Watch the […]
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“I’d say that I’m now close to being back to somewhere that resembles my old life. The most important medicine of all was my own mindset. My affirmation was “I’m getting better everyday” – Rico Franchi Singer/songwriter, vocal coach and LDUK group member Rico Franchi has released a charity […]
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We are delighted to announce that Caudwell Lyme Disease charity has now launched its website which can be found here. Congratulations to John Caudwell and CEO Veronica Hughes for producing such an informative resource which gives patients a much needed voice and tells the story of so many Lyme disease […]
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John Caudwell, British philanthropist and entrepreneur, has set up a new Lyme disease charity, Caudwell Lyme Disease to push forward important changes in the way Lyme disease and associated co-infections are diagnosed and treated in the UK. Caudwell Lyme Disease currently has two surveys running. The first one is designed […]
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On 23rd February 2016, representatives from Lyme Disease UK attended a scoping workshop hosted by NICE as part of the first stages of the new Lyme disease guidelines formation. The workshop involved an introduction to the guidelines writing process and a chance to meet the chairperson. Group discussions were held […]
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We are delighted to announce the launch of a new UK based charity, Vis-a-Vis Symposiums. The first London Tick-Borne Disease Symposium was privately funded and held in June 2014 and now that the charity has been established, the aim is to hold regular educational events on this subject. Patrons include […]
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The media interest in Lyme disease has spiked again recently with LDUK group member Emma Horlock sharing her story widely in the Daily Mail, the Liverpool Echo, ITV News and the BBC News. Emma has gone from running her own successful PR firm to spending 22 hours per day in […]
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We are delighted to announce that the LDUK Co-Founders have registered as stakeholders for the upcoming National Institute for Health and Care Excellence (NICE) Lyme disease guideline writing process. If any other patient groups or organisations would like to register as stakeholders, please check your eligibility and complete this online […]
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Patient led campaign Fight Lyme Now has produced a survey on the experiences of Lyme disease patients in this country to obtain data. Mr. Neil Coyle, MP for Old Southwark and Bermondsey began hosting the survey but it has now been taken over by Robert Buckland, MP for South Swindon who […]
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Philanthropist, entrepreneur and billionaire, John Caudwell, has recently spoken out about his son, Rufus, and other family members being diagnosed with Lyme disease. He launched a monumental media campaign to spread the word, which included a live interview on ITV’s show ‘This Morning‘, during which he explained how the disease […]
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