Lyme Disease Testing Controversy Continues…

The media interest in Lyme disease has spiked again recently with LDUK group member Emma Horlock sharing her story widely in the Daily Mail, the Liverpool Echo, ITV News and the BBC News. Emma has gone from running her own successful PR firm to spending 22 hours per day in […]

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LDUK Registers as Stakeholder for NICE Lyme Disease Guidelines

We are delighted to announce that the LDUK Co-Founders have registered as stakeholders for the upcoming National Institute for Health and Care Excellence (NICE) Lyme disease guideline writing process. If any other patient groups or organisations would like to register as stakeholders, please check your eligibility and complete this online […]

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UK Lyme Disease Patient Survey

Patient led campaign Fight Lyme Now has produced a survey on the experiences of Lyme disease patients in this country to obtain data. Mr. Neil Coyle, MP for Old Southwark and Bermondsey began hosting the survey but it has now been taken over by Robert Buckland, MP for South Swindon who […]

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John Caudwell Speaks Out

Philanthropist, entrepreneur and billionaire, John Caudwell, has recently spoken out about his son, Rufus, and other family members being diagnosed with Lyme disease. He launched a monumental media campaign to spread the word, which included a live interview on ITV’s show ‘This Morning‘, during which he explained how the disease […]

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New ILADS Guidelines

The International Lyme and Associated Diseases Society (ILADS) have produced new evidence-based guidelines for the management of patients with Lyme disease. The guidelines address three clinical questions; The usefulness of antibiotic prophylaxis for known tick bites The effectiveness of erythema migrans treatment The role of antibiotic retreatment in patients with persistent manifestations of […]

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NHS National Referral Clinic To Close

The NHS National Lyme Disease Referral clinic that has been open for just 6 months has closed. We had heard reports from patients of the clinic that the service was going to be discontinued in its present form from February 2014 onwards. In late February we asked Dr Dryden what […]

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