About Us

Welcome!

Welcome to Lyme Disease UK, a not-for-profit patient support network for Lyme disease sufferers and their loved ones around the United Kingdom. On this site you will find information and news about Lyme disease as well as details regarding local face to face support groups. The LDUK team also attends public events, meetings and conferences, liaises with other Lyme disease organisations and campaigns for an increase in knowledge and advancements in patient care. Our busy and friendly support network has been nominated for several international awards and allows people to connect with other patients and carers facing similar battles. LDUK has grown rapidly in a short amount of time which is testament to the scale of the disease but also to the wonderful community that has grown as a result of it. We are stakeholders in the NICE Lyme disease guideline writing process and many of our group members campaign hard throughout the year to raise awareness of Lyme disease. In May 2017, we launched a national ‘Wake Up to Lyme’ campaign, sending out awareness packs all over the country so that our literature could be displayed in GP surgeries, vet clinics, pharmacies, libraries, schools and recreational areas. LDUK will also be involved in the APPG for Lyme disease involving MPs who are interested in pushing for change.

Our group project page details group members’ activities and achievements.

‘Like’ our Facebook page for news and information delivered straight to your news feed, join our busy and friendly Discussion Group for support and follow us on Twitter! You can also sign up for our free monthly newsletter to be kept up to date with everything going on in the UK Lyme disease community.

‘The most inspiring aspect of Lyme Disease UK is the coming together of probably some of the sickest people in the world and their loved ones in order to support each other, to build friendships, to devote time to raising awareness, to protest, to start up charities, to give patients a voice and to foster hope in the face of so much suffering, adversity and prejudice.’  – Natasha Metcalf

Co-Founders

aboutuspicLyme Disease UK was founded in 2013 by patients Louise Dean and Natasha Metcalf. They both struggled with a lack of support and available information at the time of their diagnoses and recognised the need for a UK based support network to help patients navigate their way through the complexities and controversies surrounding Lyme disease and associated illnesses. Louise and Natasha ran LDUK together for 3 years but from April to July 2016,  LDUK expanded its team and welcomed on board 5 new volunteers. We are so grateful for the extra help!

 

“The stories of personal sacrifice soon started to emerge in our group. We learnt about people re-mortgaging their houses and selling everything in order to pay for private treatment. We learnt about whole families being infected and about people having to fund-raise in order to even get a private test as they were being denied NHS testing by their GPs. We learnt about people being belittled and laughed at by doctors. Lyme disease is more than just an epidemic…it is a humanitarian crisis.” – Natasha Metcalf


The LDUK Team

 

 

For all enquiries please contact us at admin@lymediseaseuk.com