Over the past 5 years, the Lyme Disease UK’s Online Community has grown from two founding patients, Natasha Metcalf and Louise Dean, to a community of over 9,500 members from across the UK and further abroad. Whilst it is wonderful that so many patients and their loved ones who are […]
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Are you looking for Lyme disease advice and support? Our Online Community on Facebook is a friendly space for you to ask questions, share experiences, find support and chat to people who understand. Get to know your Lyme community and join the conversation. Facts about our Online Community Founded in […]
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LDUK wants to prevent further people being infected with Lyme disease this Summer. Our ‘Wake Up to Lyme’ campaign aims to raise awareness on how to prevent tick bites, how to safely remove ticks and the importance of early treatment for those people who become unwell following a bite. You can […]
Read moreSocial Media You can find out public Facebook page here where we post Lyme disease related news and information and you also reach out to us this way. You can follow us on Twitter @UKLyme and find us on Instagram too. Lyme Disease UK also run an Online Community on Facebook. […]
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For many people, travel is a healer, a motivator, a goal and the best way to expand horizons. For those who are chronically ill, it can represent a struggle with uneasiness about how symptoms will be manageable, how pacing will be possible throughout the trip and how dietary requirements will […]
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My name is Julia Knight & I’m the Press Manager for Lyme Disease UK. I thought I might be interesting for people to have an insight into what this role entails and how very interesting it can be! How did I end up doing this job? A Brief history of […]
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This question is a highly emotional one. I wanted to raise this question in LDUK’s Online Community because I am extremely lucky to have such a strong support system. However, this doesn’t lighten the load of guilt and disappointment I feel. I know so many sufferers will feel guilty about […]
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Summer 2019 has generally been good to us but this winter is set to be another harsh one. With the rollercoaster of the seasons and a climate that is continuously changing, how is our health being affected? Many of us take holidays abroad in order to chase the sun and […]
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This is a tough cookie of a question. It pulls on the heartstrings and it can open up some raw wounds. Thank you to everyone who found the courage to share your experiences and respond to this question. I fully understand how hard it is to answer. In a study […]
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This question is heartbreaking, and I know for many people, it sparks SO many different emotions which are often, understandably, negative. When I asked this question in our Online Community, the main responses were: embarrassed, angry and let down. We feel embarrassment because we don’t want people seeing us as […]
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