5 Years of Patient Support – the LDUK Online Community

Over the past 5 years, the Lyme Disease UK’s Online Community has grown from two founding patients, Natasha Metcalf and Louise Dean, to a community of over 9,500 members from across the UK and further abroad. Whilst it is wonderful that so many patients and their loved ones who are […]

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Join our Online Community

Are you looking for Lyme disease advice and support? Our Online Community on Facebook is a friendly space for you to ask questions, share experiences, find support and chat to people who understand. Get to know your Lyme community and join the conversation. Facts about our Online Community Founded in […]

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Online Support

Social Media You can find our public Facebook page here where we post Lyme disease related news and information and you also reach out to us this way. You can follow us on Twitter @UKLyme and find us on Instagram too. Lyme Disease UK also run an Online Community on Facebook. […]

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Efforts to Engage Local Councillors in Lyme Awareness

LDUK community member Mandy, who is living with long term Lyme disease symptoms, alongside her husband, and potentially has other family members affected, has not let that stop her from trying to build health awareness of the condition and try to generate publicity, whilst maintaining her anonymity. Mandy is in […]

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The Impact of Covid-19 Lockdown by Julia Knight

Many people who are already chronically ill with Lyme disease or other illnesses were bed-bound or housebound before the Covid-19 restrictions and lockdown became part of daily life. If Lyme disease is left untreated, it can result in long term damage to the joints, heart and nervous system and this […]

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Enjoy the Outdoors Safely – a short animation from LDUK

  This stunning animation was created by the very talented RoPu Chen, Adam Duncan and Cedric Fangeat. Cedric is a member of our Online Community as has kindly shared his story with us: “I was diagnosed with Lyme disease in November 2017. The story behind having a diagnosis for Lyme […]

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Notes for Editors

Lyme Disease UK would like to connect with journalists from all media outlets and to help out with features on Lyme disease. We can put you in touch with Lyme disease sufferers, doctors and other experts to aid your work. Patient stories and photos available.  Facts and stats are available on […]

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Lyme Disease and Female Identity

Today is International Women’s Day; a global day to celebrate the social, economic, cultural and political achievements of women. On this special day, Lyme Disease UK would like to recognise the female members of our online community, who make up a staggering 78% of our numbers! This high percentage is reflective […]

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Lyme Disease and Fertility

Facing a diagnosis of Lyme disease brings with it many unique challenges. The most immediate questions raised by a female patient will likely be “How will I get better?” or “What can I do to manage my symptoms?”, but once the shock of this initial period has eased, a patient […]

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