WHAT OUR MEMBERS SAY!
LDUK brings together people suffering with Lyme Disease to provide guidance, support and a voice to us all.
LDUK has rapidly become the best place on the net for resources and support for Lyme Disease in the UK. The leaders work tirelessly to provide up to the minute research and information and despite their own illnesses, they support everyone who needs it.
This forum has the lot – a warm friendly atmosphere, all the support patients need, amazing leadership which ensures that special atmosphere prevails, a massive library of relevant, up to date information and also participation in symposia and seminars. Members are welcomed, supported and encouraged through the trials of this awful disease.
Fantastic help, information and support for both sufferers of Lyme Disease and their families.
LDUK has become an important lifeline for people with Lyme disease who often feel isolated and alone. They are also stakeholders in the NICE committee for Lyme disease guidelines. The group support each other well and share vital information with each other. Many of us would be lost without them.
LDUK provide a vital space for 1000s of UK Lyme patients and those concerned that they have been infected. They gave me information and support that is not provided by any other organisation in the UK. As a direct result of joining their group I am in treatment. I am one of many members who feel that LDUK has changed, if not saved, their lives!
The support and knowledge that the founders and members of this group give for many people suffering from Lyme Disease and co-infections and ignored by the mainstream medical profession is phenomenal.
With over 5 and a half thousand members this forum is an invaluable source of information and support for anyone suffering from Lyme disease. A warm, compassionate, insightful and extremely knowledgeable group.
A community which offers an invaluable source of support for thousands of patients across the UK who are dealing with an illness that can cause very intense suffering, but which is still not fully understood by the UK medical community. LDUK is a lifeline but is also involved in many efforts to improve the handling of Lyme disease in the UK.
This patient support network has a private discussion group where we discuss anything and everything to do with Lyme disease and the many problems we face with diagnosis and treatment in the UK. If it wasn’t for this group I’d be a lot worse off. Lyme Disease UK has had such a positive impact on my Lyme journey.
Louise and Natasha have created a fantastic supportive group in the midst of their own illness. They put a lot of time and effort into the rapidly growing group, offering support, education and information to sufferers and relatives of sufferers of this terribly misunderstood disease. It gives us all hope that one day proper diagnosis and treatment will be available.
Lyme disease sufferers feel isolated, abandoned, socially stigmatised and are often branded as mentally ill or malingerers when they actually have a treatable infection. Natasha and Louise both have Lyme and are really quite sick but despite this, they put a huge amount of effort in, daily, supporting other sufferers and bringing a voice to those who are voiceless. The group is very active, with online discussion, friendship, and engagement with the wider political and policy regarding Lyme disease in the uk. The group is an absolute lifeline to many.
Lyme Disease UK is a wonderful forum! It has helped me so much while I’ve been navigating my own health problems. Natasha & Louise did a wonderful thing when they founded the community and, together with their admin helpers, they do a great job running it. They’re very responsive to any questions, and are so knowledgeable and kind. Thank you LDUK!