Nicola’s story

Nicola Lavin, 37

  • Bitten in New York state USA when visiting in 2001.
  • Came home unwell but then discovered she was pregnant and symptoms were attributed to pregnancy.
  • Went into heart failure during pregnancy, so baby had to be delivered early.
  • Recovered somewhat with heart medication but still didn’t feel well.
  • Was eventually diagnosed with M.E. 9 years later.
  • Negative Lyme disease ELISA from NHS.
  • Gradually became more unwell.
  • Had steroid infusions with NHS before Christmas 2015 and got significantly worse bringing Lyme into question.
  • Had private Lyme disease tests which were positive.
  • Started treatment privately and is now making improvements.