During the recent media coverage of Lyme disease, quotes from Lyme Disease Action provoked some concern amongst LDUK members that the charity wasn’t representing patients accurately. Some of the information given out was called into question as well as the role of the charity. Lyme Disease Action then requested that LDUK members write out a list of concerns and questions to be addressed.
The questions and answers are now available to view. Some answers are useful and offer clarification but some appear to avoid the questions. We are in the process of following up on some of the answers provided and we will update this post as soon as more information becomes available to us.
Thanks to LDUK members Louise Alban and Anna Jenkins who gathered the questions and organised the process.
IGeneX laboratory in the US have issued this statement in response to Lyme Disease Action’s comments about talks between the laboratory and PHE.