Lyme Disease UK submitted a document containing 59 questions for the staff at the Rare & Imported Pathogens lab and the new Lyme Disease Referral Clinic at Winchester before the PHE Lyme disease conference in October 2013. These were compiled by our discussion group members in collaboration. We hoped that by posing these questions we’d gain insight into any new advances PHE have made in diagnosing and treating tick borne diseases so that members had up to date information for making their own health decisions. We also wanted to open a dialogue between PHE and patient groups to try to close the gulf of mistrust on both sides.