Letter to MPs and LDUK Response to Government Petition Statement

  LDUK group members signed and shared a petition demanding better testing and treatment for Lyme disease which generated over 10,000 signatures. The government then had to issue an official response which can be found here. LDUK members were dissatisfied with the official response and some prepared their own responses […]

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Lyme Disease Testing Controversy Continues…

The media interest in Lyme disease has spiked again recently with LDUK group member Emma Horlock sharing her story widely in the Daily Mail, the Liverpool Echo, ITV News and the BBC News. Emma has gone from running her own successful PR firm to spending 22 hours per day in […]

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Diagnosing Lyme disease

    Diagnosing Lyme disease can be difficult due to the wide range of symptoms and unreliable blood tests. GPs often miss the diagnosis and there are also many uncertainties surrounding the disease, as outlined by the James Lind Alliance findings.   The EM Rash In the early stages (between […]

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Fight Lyme Now Campaign Goes Live!

The ‘Fight Lyme Now’ campaign was set up by LDUK group member Demetrios Loukas and comprises of a patient survey hosted by Neil Coyle MP for Bermondsey and Old Southwark and a petition for UK citizens to sign. The survey needs a minimum of 1,000 UK Lyme disease patients to […]

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NHS National Referral Clinic To Close

The NHS National Lyme Disease Referral clinic that has been open for just 6 months has closed. We had heard reports from patients of the clinic that the service was going to be discontinued in its present form from February 2014 onwards. In late February we asked Dr Dryden what […]

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New Map of Medicine & UK Guidelines

Public Health England have confirmed that they are to coordinate the development of new UK guidance on the diagnosis and treatment of cases of Lyme disease, They first announced it at the PHE London Conference in October but it’s very reassuring to see it in black and white. “Brooks said guidance […]

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Group Questions Answered

Lyme Disease UK submitted a document containing 59 questions for the staff at the Rare & Imported Pathogens lab and the new Lyme Disease Referral Clinic at Winchester before the PHE Lyme disease conference in October 2013. These were compiled by our discussion group members in collaboration. We hoped that […]

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