Our Response to the Draft NICE Guideline

‘An Inadequate Tool for Doctors and Patients, Seriously Undermined by Lack of Evidence’ Lyme Disease UK is a registered stakeholder in the NICE Lyme disease guideline writing process. As the UK’s largest patient support network, taking part in this process has been an important priority because once finalised, the guideline […]

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NICE Guideline Scope Stakeholder Comments Published

  ‘Lyme Disease UK is a patient support network with nearly 4000 members and bears witness daily to thousands of patients who are suffering on an inhumane scale. Many have been ridiculed by medical professionals in various disciplines, dismissed, belittled, neglected and left with increasingly frightening and painful symptoms for […]

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NICE Lyme Disease guidelines – Stakeholder Workshop & Draft Scope

On 23rd February 2016, representatives from Lyme Disease UK attended a scoping workshop hosted by NICE as part of the first stages of the new Lyme disease guidelines formation. The workshop involved an introduction to the guidelines writing process and a chance to meet the chairperson. Group discussions were held […]

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LDUK Registers as Stakeholder for NICE Lyme Disease Guidelines

We are delighted to announce that the LDUK Co-Founders have registered as stakeholders for the upcoming National Institute for Health and Care Excellence (NICE) Lyme disease guideline writing process. If any other patient groups or organisations would like to register as stakeholders, please check your eligibility and complete this online […]

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