In My Blood – A Story of Lyme Disease in the UK

    In my Blood is an in depth look at the complex and baffling world of Lyme disease in the UK, as told by people whose lives have been shaped by it. The piece starts with the difficulties surrounding diagnosis and how many patients took years to finally get […]

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Lyme Disease Facts and Stats

A selection of quick Lyme disease facts and stats. Lyme disease is caused by a spirochete – a corkscrew-shaped bacteria called Borrelia. In 1993, Lyme disease was described by Oxford scientists as a danger to the public. A leading Lyme disease specialist has described the illness as ‘the AIDS of […]

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Congenital Lyme Disease

Whilst patients and some researchers suspect various ways in which the Borrelia bacteria can be transmitted, so far the only proven methods are through tick bites, congenitally and, probably, via blood transfusions. In this guest blog post, the published evidence is summarised on congenital Lyme disease. Confusion over congenital Lyme […]

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Vis a Vis Symposium, October 2016

LDUK would like to congratulate the charity Vis a Vis Symposiums on their second symposium which sounds as though it was a wonderful event! Thank you to Joanne Drayson, trustee of the charity, for this summary of the presentations. ‘I know one or two of you will be interested to […]

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Letters to BBC Radio 4 Woman’s Hour

On 12th July 2016, Woman’s Hour on Radio 4 covered the subject of Lyme disease. The programme can be listened to here. The feature starts at approximately 24 minutes in. This slot came about as a result of a letter from Louise Alban to Radio 4 editors, which can be […]

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A Bout with an Alien Entity

This month’s guest blog is by LDUK group member and osteopath, Robert Hale who describes the sense of invasion that often accompanies Lyme disease and as a health professional, gives a unique perspective on becoming a patient. He blogs at A Quack’s Diary. The experience You are lying in bed, as […]

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Chris Packham and Big Tick Project in Wimbledon!

          On 2nd September 2016, naturalist and TV presenter Chris Packham will be meeting pet owners on Wimbledon Common as part of the Big Tick Project and to kick off ‘Tick Awareness Month’. He will be giving free talks throughout the day on the dangers of […]

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Travels Through Lyme Disease UK

This month’s guest blog is by Natasha Metcalf, who along with Louise Dean, co-founded Lyme Disease UK. Natasha reflects on how LDUK began, what the group has taught her as well as her personal journey with the illness. The past few years have been a whirlwind and a roller-coaster combined. […]

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Letter to MPs and LDUK Response to Government Petition Statement

  LDUK group members signed and shared a petition demanding better testing and treatment for Lyme disease which generated over 10,000 signatures. The government then had to issue an official response which can be found here. LDUK members were dissatisfied with the official response and some prepared their own responses […]

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