Patient-Led Parliamentary Lyme Disease Conference 2015

A date has now been set for the upcoming conference in London. Lyme disease patient Demetrious Loukas has initiated this event and has released details of the conference as well as instructions on how to reserve a place. The more support, the better, for what will undoubtedly be a very important event […]

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Elaine’s awareness music single – Once Bitten Twice Shy

Elaine Griffin from Ireland has been suffering with poor health for 24 years. Here she talks about getting an eventual Lyme disease diagnosis, her fundraising and creating her awareness music single ‘Once Bitten Twice Shy’ which includes tick prevention information and a tick remover. **************************************************** Hi Everyone, My name is Elaine Griffin […]

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ILADS Conference 2014

ILADS hosted its Annual Lyme Disease Conference in Washington DC, USA on 10-12th October. Twitter was ablaze with live updates from the event which LDUK tuned into and according to @DrDanielCameron, the current president, ILADS’ membership has ‘more than doubled in past 3 years’ which is an exciting prospect for […]

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4th Annual Wego Health Awards

Lyme Disease UK are thrilled to announce that we’ve been nominated for the 4th Annual Wego Health Activist Awards! The awards aim to recognise people and organisations which make a difference to the lives of patients and carers. This year we’ve been nominated for the categories of; Best in Show: […]

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The Mystery of Lyme Disease – Dr Pugliese

Diagnosing and treating this patient is a labor-intensive effort. It takes patience and understanding in order to be successful. Unfortunately for many in my profession, both are in short supply. Mix that with not fully understanding how to view the data before them, and many patients are dismissed and labeled as kooks. It’s time to be less dismissive and learn to look and listen better.

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Question of Perspective – Laura Brown

Many thanks to Laura Brown for this post showing how important it is to keep perspective on our illness and to see the positives. You can read more of her blog over at  http://lauralyme.tumblr.com which also links to her fundraising campaign for Lyme disease treatment.   A Question of Perspective   […]

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NHS National Referral Clinic To Close

The NHS National Lyme Disease Referral clinic that has been open for just 6 months has closed. We had heard reports from patients of the clinic that the service was going to be discontinued in its present form from February 2014 onwards. In late February we asked Dr Dryden what […]

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Lyme disease awareness month & UK protest promotional graphics

Our group members have been busy making promotional graphics and banners for the upcoming Lyme disease awareness month of May and the UK’s part in the Worldwide Lyme Disease Protest. We encourage them to be widely shared both on and off the internet. More information can be found about the protest […]

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Moving the goal posts – Sophie Grace Kellaway

Moving the goal posts by Sophie Grace Kellaway Recently I’ve noticed that as I’ve been recovering, I’ve been changing my targets for wellness. By moving the goalposts without even realising, I’ve been feeling like I’ve not been making progress. Only when I’ve stopped to think about the real changes can […]

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You never know – Jas Matthews

Happy new year! Our next guest blog is from UK patient and LDUK group member Jas Mathews and talks about living with chronic Lyme disease and how she meets the unique challenges it brings. Read more of her blog here http://lojango.blogspot.co.uk/. If you have a blog you would like featured, please […]

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