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NICE Lyme Disease Guideline Published

The NICE Lyme disease guideline has now been published and can be accessed here. LDUK commented extensively on the draft guideline, labelling it as ‘an inadequate tool for doctors and patients, seriously undermined by lack of evidence’. Our comments can be found here. The usefulness of the guideline is therefore […]

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US Tick-Borne Working Group Launches

We have been closely following the federal Tick-Borne Disease Working Group across the pond, in Washington DC. “The Tick-Borne Disease Working Group was established by Congress in 2016 as part of the 21st Century Cures Act to provide subject matter expertise and to review federal efforts related to all tick-borne diseases, to […]

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The Global Natural Healthcare Trust Charity Conference

“There has to be a way forward when you are living with Lyme Disease” On 25th November 2017, some LDUK members attended the conference ‘There has to be a way forward when you are living with Lyme Disease’  by The Global Natural Healthcare Charity Trust in Edinburgh. Hosted by charity […]

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Hope at Christmas by Morven-May MacCallum

Author Morven-May MacCallum reflects on 2017 and the hope it has brought her, achieving more than she could ever imagined.  Morven-May has combined her book promotion with raising awareness of Lyme disease and raising funds for Lyme Disease UK. Thank you Morven-May for all your support this year! Sometimes it […]

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Enjoythecountryside.com

Enjoythecountryside.com is a collaboration between Caudwell LymeCo charity and Lyme Disease UK. Our aim is to raise awareness of the dangers in the British countryside so that everyone can enjoy it to the maximum, whilst staying safe. Caudwell LymeCo charity Caudwell LymeCo is a registered charity whose aim is to […]

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Our Response to the Draft NICE Guideline

‘An Inadequate Tool for Doctors and Patients, Seriously Undermined by Lack of Evidence’ Lyme Disease UK is a registered stakeholder in the NICE Lyme disease guideline writing process. As the UK’s largest patient support network, taking part in this process has been an important priority because once finalised, the guideline […]

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‘Unrest’ – UK Screenings

An Award-Winning Film about ME Lyme disease and ME patients often live in a parallel universe. There are so many overlaps between the two conditions. How many ME patients have Lyme disease? How many of the associated co-infections and viruses which can overwhelm Lyme disease patients’ immune systems also affect […]

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NICE Guidelines – What’s Next?

In 2015, LDUK registered as stakeholders in the process. Representatives from LDUK attended a stakeholder meeting in February 2016 and submitted our comments on the draft scope. NICE completes five steps before new guidelines are published. The Lyme disease guidelines are currently at step 3. The details of the steps […]

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Judy Rocher and Rebecca Cotterall – Expert Q&A Video

On 10th August 2017, LDUK was delighted to welcome Judy Rocher and Rebecca Cotterall, from the London Clinic of Nutrition, to take part in a Q&A session with us, answering pre-submitted questions from group members. Thank you so much for joining us and for sharing your treatment approach and knowledge with us! […]

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