NHS National Referral Clinic To Close

The NHS National Lyme Disease Referral clinic that has been open for just 6 months has closed. We had heard reports from patients of the clinic that the service was going to be discontinued in its present form from February 2014 onwards. In late February we asked Dr Dryden what […]

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Lyme disease awareness month & UK protest promotional graphics

Our group members have been busy making promotional graphics and banners for the upcoming Lyme disease awareness month of May and the UK’s part in the Worldwide Lyme Disease Protest. We encourage them to be widely shared both on and off the internet. More information can be found about the protest […]

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Worldwide Lyme Disease Protest 2014

In the UK, Lyme disease isn’t well known and the mainstream view remains, especially amongst Infectious Disease consultants that the disease is hard to catch and easy to treat. The public are largely unaware of tick bite prevention or the seriousness of Lyme and associated diseases. We protest to try […]

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Moving the goal posts – Sophie Grace Kellaway

Moving the goal posts by Sophie Grace Kellaway Recently I’ve noticed that as I’ve been recovering, I’ve been changing my targets for wellness. By moving the goalposts without even realising, I’ve been feeling like I’ve not been making progress. Only when I’ve stopped to think about the real changes can […]

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You never know – Jas Matthews

Happy new year! Our next guest blog is from UK patient and LDUK group member Jas Mathews and talks about living with chronic Lyme disease and how she meets the unique challenges it brings. Read more of her blog here http://lojango.blogspot.co.uk/. If you have a blog you would like featured, please […]

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Merry Christmas!

Lyme Disease UK wishes all of our members, supporters, likers and followers a very merry Christmas, a happy and healthier new year!   A group member provided us with much hilarity by writing this Lymie take on All I Want For Christmas by Mariah Carey. Original version can be found […]

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Wego Health Activist Award Nominations

We are thrilled to announce that Lyme Disease UK has been nominated for multiple Wego Health Activist Awards!  Here is a quote from a nominator: In a world of chronically sick people, they have started and developed an online support group for Lyme disease, one of the most misunderstood illnesses […]

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New Guest Blog Section

We are very proud to have a new part of the website which will feature blog posts from a variety of Lyme patients, campaigners and carers. They’ll be tacking a variety of subjects relating to the patient experience of Lyme disease in the UK. We cope these will give valuable […]

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New Map of Medicine & UK Guidelines

Public Health England have confirmed that they are to coordinate the development of new UK guidance on the diagnosis and treatment of cases of Lyme disease, They first announced it at the PHE London Conference in October but it’s very reassuring to see it in black and white. “Brooks said guidance […]

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Group Questions Answered

Lyme Disease UK submitted a document containing 59 questions for the staff at the Rare & Imported Pathogens lab and the new Lyme Disease Referral Clinic at Winchester before the PHE Lyme disease conference in October 2013. These were compiled by our discussion group members in collaboration. We hoped that […]

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