Welcome

Welcome to Lyme Disease UK, a support organisation founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our online support group, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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Featured

European Parliamentary Debate on Lyme Disease

On Thursday 15th November 2018, Lyme disease will be debated at the European Parliament in Strasbourg between 9am-11.50am (8.00am – 10.50am GMT). You can read the agenda here You can tune in to watch the debate online here It is good that Lyme disease is getting attention from MEPs and […]

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Sophie Ward

What does LDUK mean to me?

As part of LDUK’s birthday celebrations, I wanted to share what the community means to me, and how it’s helped shaped my life. LDUK means the world to me. It was a place that called me family before I really understood my health or anything about Lyme disease. There were […]

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Julia in Dubai on a 'better day'

Meet the team: Julia Knight

In 1999 I was bitten by ‘something’ while on holiday at Center Parcs near Thetford, Norfolk. Despite being a senior paediatric nurse I had no knowledge of Lyme disease. Over the next few months I became progressively unwell resulting in me being unable to get out of bed, sleep, swallow […]

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Top 5 ways to help

5 Ways To Help Others

To celebrate the 5th anniversary of Lyme Disease UK we are running with the ‘5’ theme… kicking off with 5 ways to help others. Helping others gives us all a buzz and we always feel better mentally and physically when we see others smile. These are often selfless and free […]

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A 5 Year Reflection

As Lyme Disease UK turns 5 this year, it only seems right to reflect on this period of time which spans half a decade and to take stock of what has developed organically over the years. I have to pinch myself everytime I realise that a Facebook group which I […]

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5 Years of Patient Support – the LDUK Online Community

Over the past 5 years, the Lyme Disease UK’s Online Community has grown from two founding patients, Natasha Metcalf and Louise Dean, to a community of over 9,500 members from across the UK and further abroad. Whilst it is wonderful that so many patients and their loved ones who are […]

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Dr Carsten Nicolaus – Expert Q&A Video

After finishing his academic education at two German Universities (Regensburg and Munich) and medical training, Dr. Carsten Nicolaus opened his own GP practice in Augsburg in the South of Germany. Only a few weeks after the opening of the practice, he was confronted with problems of tick-borne diseases, particularly Lyme […]

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