Welcome to Lyme Disease UK, a support organisation founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our online support group, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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Wake Up to Lyme Campaign Update

We are midway through Lyme awareness month and our ‘Wake up to Lyme’ campaign has been taking the nation by storm! Over 500 awareness packs have been distributed with orders for hundreds more flooding in. Thank you to Mosi-Guard Natural who teamed up with us to provide 500 packs and […]

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APPG Enquiry Begins

On 8th May 2018, the newly formed All Party Parliamentary Group held their first meeting of an Enquiry into Lyme disease which they are conducting. The series of meetings will cover a range of topics and the proposed schedule is as follows but may be subject to change: Session 1- […]

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The Life of a Campaigner

LDUK admin Sophie Ward shares what she has been doing for our annual ‘Wake Up to Lyme’ campaign to inspire people to get involved in spreading the word about the dangers of ticks. I arranged a brief meeting with my local MP,  Ben Wallace, to fill him in on where […]

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Anatomised – A Novel by A.F. McGuinness

We are delighted to announce the launch of a new novel, Anatomised, by author and Lyme sufferer, A.F. McGuinness who is also an active member in our LDUK Online Community. Andrew held this official launch in Canterbury on 3rd May and he shares with us how it felt to release […]

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How to Choose a Complementary or Alternative Medicine Practitioner

Many of our members consider complementary or alternative treatment. If you do wish to explore this route, there are many different options and it’s very important to try and choose the right practitioner to suit your needs. Most types of Complementary and Alternative Medicine (CAM) practitioners are not regulated by the […]

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Doctors’ Thoughts on NICE Lyme Disease Guideline

In some ways (particularly for acute cases of Lyme disease) the new NICE Lyme disease guideline represents a small step in the right direction and as stakeholders in the process, LDUK has commented extensively on both the draft and final version. In our Online Community and via our survey, we […]

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Wake Up to Lyme Campaign 2018

May is Lyme Disease Awareness Month! LDUK wants to prevent further people being infected with Lyme disease this Summer. Our ‘Wake Up to Lyme’ campaign aims to raise awareness on how to prevent tick bites, how to safely remove ticks and the importance of early treatment for those people who become […]

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Wake Up to Lyme Campaign Video

May is Lyme disease awareness month. We are kicking off our second ‘Wake Up to Lyme’ campaign to raise even more awareness this year. Our campaign consists of sharing information across our social media platforms and sending out awareness packs containing leaflets, posters and car stickers to be distributed across […]

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Mosi-guard Natural to Support LDUK Wake Up to Lyme Campaign 2018

Great news for LDUK’s awareness campaign this year! LDUK has teamed up with Mosi-guard Natural to deliver over 500 of our awareness packs around the UK. Jacqueline Watson, Managing Director, Mosi-guard Natural said, ‘Mosi-guard Natural® is delighted to support LDUK’s Wake Up to Lyme campaign. This is a fantastic awareness initiative to […]

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