Welcome to Lyme Disease UK, a support organisation founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our online support group, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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You Know You’re a Lymie When…

One of the hallmarks of Lyme disease is the dreaded ‘brain fog’ which can lead to some rather embarrassing mishaps. Sometimes, laughter is the best medicine and so we asked our Online Community to share some of their foggy moments by finishing the sentence ‘You know you’re a Lymie when…’ […]

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Children’s Poster Competition 2018

Each year we host a Children’s Poster Competition as part of our ‘Wake Up to Lyme’ campaign and strive to get Lyme disease education into schools using our school awareness packs. We are delighted to announce our winner and runners up and thank you to all the children who took […]

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Awareness Posters for Local Authorities

Wake Up To Lyme Campaign Posters (click to download, print and share!)     Download a personalised electronic version of the detailed poster above here, (press CTRL+F to search for individual MP names and download relevant page of the file).  If you have any issues downloading your poster please email admin@lymediseaseuk.com with ‘MP […]

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John Caudwell’s Funding Pledge for Lyme Research

Entrepreneur, philanthropist and Chair of Caudwell LymeCo Charity, John Caudwell, has pledged over £1 million for Lyme disease research, provided that the Government also pours money into an urgently needed research fund to find out more about this misunderstood disease. He has also kickstarted an email campaign called ‘Lobby for […]

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How Does Lyme Disease Affect Your Relationships?

This is a very hard and emotional question for many people to answer but we wanted to get a sense of how people’s relationships in our Online Community are affected. Many people feel a great sense of loss as those who were once so dear to us simply can’t or […]

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Scottish Parliament Photo Call

LDUK’s Morven-May MacCallum headed to the Scottish Parliament following First Minister’s Questions to host a photo call to raise awareness of Lyme disease, sponsored by Alexander Burnett MSP. Below is Morven-May’s write up of the event! A big thank you to Morven-May, to Alexander Burnett and to all the MSPs […]

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How Does the Weather Affect Lyme Patients?

As Brits, one of our national pastimes seems to be complaining about the weather; it rarely seems to please us! One minute it’s too hot, the next it’s too cold and gloomy. When it comes to Lyme disease and some other chronic illnesses as well, the weather seems to play […]

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What Has Made You Most Proud Since Becoming Unwell?

LDUK Admin Sophie Ward posed the question ‘what has made you most proud since becoming unwell?’ to our Online Community: It’s a tough question in many ways. As our health fails we easily fall into the trap of having a mindset that leaves us feeling as though we are failing […]

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Living with Lyme: My Journey So Far by Craig Fordham

I am a full-time Survival and Bushcraft instructor from Blackwolf Survival & Bushcraft living in Kent. I’ve pretty much spent my life in the great outdoors and have been lucky enough in that time to have travelled to and worked in some pretty amazing places. Of course I’ve always been […]

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