Welcome

Welcome to Lyme Disease UK, a support organisation founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our online support group, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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Featured

Lyme Disease: My Journey So Far by Craig Fordham

I’m seldom happier then when I’m in the great outdoors, especially the woods and in the forest and I’ve been lucky enough to have spent the vast amount of my working life learning and teaching in this environment. Now, this does come with a few issues for me. Firstly, I’m […]

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Am I Going Mad? By Peter Hill

An Insight into my Personal Journey with the Psychiatric Aspects of Lyme Disease Why am I feeling this way? This will always be the first question we ask ourselves no matter what ails us. We may need the reassurance of someone we trust to tell us what it is that […]

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European Diversity Awards 2018

We are so proud of LDUK’s Sophie Ward for being short-listed for the Campaigner of the Year award at the European Diversity Awards 2018 for her work with LDUK and Invisiyouth. Congratulations on making it so far, Sophie, and for being such a wonderful ambassador for LDUK and for all […]

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How Has LDUK Helped You?

Lyme disease is a complex condition that can leave many of us feeling alone. We don’t always know where to turn, doctors don’t understand our symptoms; family members can’t always relate, and friends often struggle to see our pain. That’s why LDUK is so important – we have an amazing […]

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MEPs Back Calls for Action on the Spread of Lyme Disease

On November 15th 2018, Lyme disease was debated at the European Parliament in Strasbourg, where MEPs called for a European plan to combat Lyme disease. Over 20 representatives from the member states spoke of the explosion of Lyme and other tick-borne diseases, and the major health challenges this poses. “We […]

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How To Raise Lyme Disease Awareness

Raising awareness is a proactive and productive dose of medicine. It can give us a real buzz, provide us with a sense of a purpose, and make a real difference at the same time. You don’t have to go to extreme lengths to raise awareness, simply sharing your story with […]

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Meet The Team: Natasha Metcalf

I have been ill since I was 16 years old. I suffered with a ‘mystery illness’ for many years after removing what I thought was a tiny splinter from my leg, following a mountain hike. It was the Christmas holidays and we were living in Hong Kong at the time. […]

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How To Enjoy The Party

As 2018 marks LDUKs 5th birthday and Christmas is on the horizon, we’ve been talking about celebrations and how to best manage our symptoms when trying to enjoy ourselves. The Christmas period can often leave us feeling stressed. There are so many people to see, so many events, so much […]

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European Parliamentary Debate on Lyme Disease

On Thursday 15th November 2018, Lyme disease will be debated at the European Parliament in Strasbourg between 9am-11.50am (8.00am – 10.50am GMT). You can read the agenda here You can tune in to watch the debate online here It is good that Lyme disease is getting attention from MEPs and […]

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Sophie Ward

What Does LDUK Mean To Me?

As part of LDUK’s birthday celebrations, I wanted to share what the community means to me, and how it’s helped shaped my life. LDUK means the world to me. It was a place that called me family before I really understood my health or anything about Lyme disease. There were […]

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