Welcome to Lyme Disease UK, a support organisation founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our online support group, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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Government Review Findings

Lyme Disease UK representatives, along with those from other charities and patient groups, were invited to take part in the UK Government Independent Reviews on Lyme disease, commissioned by the Department of Health. Our participation was made up of a face to face consultation with the researchers as well as […]

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All-Party Parliamentary Group Meeting

On 23rd January 2018, two representatives from LDUK attended a meeting held by the All-Party Parliamentary Group for Lyme disease along with representatives from other Lyme disease organisations and patient groups in the UK. Members of each group were given a chance to present and Lyme Disease UK’s presentation can […]

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Daisy White – Expert Q&A Video

Daisy White is a health advocate and wellness coach whose mentors include Dr. Klinghardt. Daisy has experienced Lyme disease first hand having struggled as both an undiagnosed patient attempting to convince doctors that she was actually ill, and as a diagnosed patient weaving her through the maze of healthcare providers […]

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January Blues by Sophie Ward

  January blues All the ‘To-Dos’ Doctors appointments and feeling the backlash, The festive period was over in a flash, It’s was such a dash, For a big bash, You tried to feel included, But felt so excluded, Your pain radiates all around, You scream help but nobody hears your […]

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Join our Online Community

Are you looking for Lyme disease advice and support? Our Online Community on Facebook is a friendly space for you to ask questions, share experiences, find support and chat to people who understand. Get to know your Lyme community and join the conversation. Facts about our Online Community Founded in […]

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Dr John Lambert – Expert Q&A Video

Dr John Lambert is a consultant in Medicine and Infectious Diseases (MD PhD) at the Mater Public and Private Hospitals, Rotunda Hospitals, and teaches at the UCD School of Medicine and Medical Science. He qualified in New York State and was involved in evaluating and diagnosing many Lyme disease patients. […]

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US Tick-Borne Working Group Launches

We have been closely following the federal Tick-Borne Disease Working Group across the pond, in Washington DC. “The Tick-Borne Disease Working Group was established by Congress in 2016 as part of the 21st Century Cures Act to provide subject matter expertise and to review federal efforts related to all tick-borne diseases, to […]

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The Global Natural Healthcare Trust Charity Conference

“There has to be a way forward when you are living with Lyme Disease” On 25th November 2017, some LDUK members attended the conference ‘There has to be a way forward when you are living with Lyme Disease’  by The Global Natural Healthcare Charity Trust in Edinburgh. Hosted by charity […]

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