Welcome to Lyme Disease UK, a support organisation founded by Lyme disease patients and run by volunteers.

We are healthcare advocates campaigning for increased knowledge and awareness of Lyme disease and the associated factors. Our website is full of information and you can also find us on social media via Facebook, Instagram and Twitter. Be sure to check out our online support group, browse the meet-up section and sign-up to our newsletter.

Lyme disease is caused by Borrelia, a spirochete bacteria. It’s the most common tick-borne disease in the northern hemisphere and there are multiple strains of the bacteria. Lyme disease is endemic in many parts of the United Kingdom, particularly in woodland or heath-land areas but disease carrying ticks can also be found in cities and gardens.

Public Health England estimates that there are 3,000 new cases of Lyme disease per year. However, this is likely to be a gross underestimate. There is a discrepancy in estimations and the exact number will likely remain unknown, due to the fact that Lyme disease is not a reportable condition and there are still many UK healthcare professionals and patients who are not able to identify and diagnose the condition.

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How Long Did It Take You to Get Diagnosed?

Lyme disease is still widely misunderstood by the medical profession. Through our awareness work, it is our wish that people are diagnosed more quickly so that they don’t miss the crucial window for early treatment but so many members of our Online Community have suffered for years on end, often […]

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Living in the Moment with Lyme

What is the most challenging part of living with Lyme disease? Let’s face it, there are enough physical symptoms that would be deserving answers to this question. Feeling so fatigued that lifting your arms to brush your hair is a struggle, irregular heartbeats thumping you from the inside your chest, […]

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Sunshine 4 Lyme Campaign by Kelly Williams

Hi my name is Kelly Williams and last year I started a campaign called Spreadalittlesunshine.  I wanted to raise £60,000 for someone called Sol who lives in Argentina and suffers from chronic Lyme disease. I didn’t even know Sol, she was a friend of a friend who I was supposed […]

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Activity Pack for Children

If you’re looking for something to entertain and educate children please download our free printable Lyme Disease UK Activity Pack here. There is more information about keeping children safe including a full school pack here. Do share their finished colouring on social media and tag Lyme Disease UK in your posts.

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Bushcraft show collage

Group Projects 2018

2018 has been an incredible year for LDUK. Our community has grown bigger by the day and we continue to be inspired by all the hard work and determination we see. So much has been going on, from new local support groups popping up to the fantastic efforts lobbying support […]

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What Do You Wish Your Doctor Understood About Lyme Disease?

Many Lyme patients hit a brick wall when we are faced with doctors who belittle our suffering and who are not knowledgeable about Lyme disease and its devastating effects. We asked our Online Community what they would like doctors to understand when it comes to living with Lyme disease: “That […]

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You Know You’re a Lymie When…

One of the hallmarks of Lyme disease is the dreaded ‘brain fog’ which can lead to some rather embarrassing mishaps. Sometimes, laughter is the best medicine and so we asked our Online Community to share some of their foggy moments by finishing the sentence ‘You know you’re a Lymie when…’ […]

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Children’s Poster Competition 2018

Each year we host a Children’s Poster Competition as part of our ‘Wake Up to Lyme’ campaign and strive to get Lyme disease education into schools using our school awareness packs. We are delighted to announce our winner and runners up and thank you to all the children who took […]

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