Links

 

There is a wide range of useful information in the files section of the Facebook discussion group,  but here are some links to some of the main resources that provide a good starting point for learning about Lyme disease.

 


About Time For Lyme
A UK based awareness raising charity providing excellent educational resources and tips to stay safe.

BADA-UK
UK based tick borne disease educators who also have a lot of information on Lyme Disease in the UK

Better Health Guy
Informative website and blog run by expert patient advocate

Caudwell Lyme Disease
UK based charity established by entrepreneur and philanthropist, John Caudwell.

EuroLyme
Yahoo email group for European Lyme patients and their loved ones

ILADS
International Lyme and Associated Diseases Society.  Non profit organisation who do research and write publications on the diagnosis and treatment of tick borne diseases
Authors of widely used guidelines  http://www.ilads.org/lyme/treatment-guideline.php (Not used by the NHS.)

LymeAid UK
New charity that aims to provide grants to people on low income who suspect they have Lyme Borreliosis to obtain private overseas testing for the disease

Lyme Disease Action
UK based Charity and Certified Member of the Information Standard, giving information to patients, doctors and researchers. They are a fantastic resource and will gladly give information, studies and leaflets to patients to help them talk about Lyme disease and other tick borne diseases with their doctors. Email them at: support@lymediseaseaction.org.uk

Lymedisease.org
US based charity with an informative website and an active news section

Lyme Research UK
UK based research organisation. Email them at: lymeresearchuk@btinternet.com

Tick Talk Ireland
Irish based organisation. Lots of helpful resources on Lyme and associated diseases

Tired of Lyme
Good resource for understanding more about treatment processes, detox methods and coping strategies

Under Our Skin
Documentary featuring everything you need to know about Lyme disease – essential viewing! Available to watch here

VIRAS
UK based non-profit group comprised of patients and professionals with knowledge and experience in Lyme borreliosis and coinfections, Myalgic Encephalomyelitis (M.E.) and Chronic Fatigue Syndrome (CFS).

Vis a Vis Symposiums
UK based charity raising awareness, sharing information and hosting symposiums in order to bring together international researchers, practitioners and vets in the field of vector-borne infections

Worldwide Lyme Protest – UK
Each May countries across the world unite in protest for better diagnostics and treatment of Lyme and associated diseases.  The website also contains patient stories

Why Can’t I Get Better? Book by Dr Horowitz
Essential reading on the complexity of Lyme and associated diseases. Includes a symptom questionnaire where you can find out what the likelihood is of Lyme and associated diseases being the cause of your illness

 

 

 

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