Lyme Disease Testing Controversy Continues…

The media interest in Lyme disease has spiked again recently with LDUK group member Emma Horlock sharing her story widely in the Daily Mail, the Liverpool Echo, ITV News and the BBC News. Emma has gone from running her own successful PR firm to spending 22 hours per day in […]

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LDUK Registers as Stakeholder for NICE Lyme Disease Guidelines

We are delighted to announce that the LDUK Co-Founders have registered as stakeholders for the upcoming National Institute for Health and Care Excellence (NICE) Lyme disease guideline writing process. If any other patient groups or organisations would like to register as stakeholders, please check your eligibility and complete this online […]

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Questions Posed to Lyme Disease Action

During the recent media coverage of Lyme disease, quotes from Lyme Disease Action provoked some concern amongst LDUK members that the charity wasn’t representing patients accurately. Some of the information given out was called into question as well as the role of the charity. Lyme Disease Action then requested that […]

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UK Lyme Disease Patient Survey

Patient led campaign Fight Lyme Now has produced a survey on the experiences of Lyme disease patients in this country to obtain data. Mr. Neil Coyle, MP for Old Southwark and Bermondsey began hosting the survey but it has now been taken over by Robert Buckland, MP for South Swindon who […]

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Fight Lyme Now Campaign Goes Live!

The ‘Fight Lyme Now’ campaign was set up by LDUK group member Demetrios Loukas and comprises of a patient survey hosted by Neil Coyle MP for Bermondsey and Old Southwark and a petition for UK citizens to sign. The survey needs a minimum of 1,000 UK Lyme disease patients to […]

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AONM Lifting the Veil 2 Conference

  On Sunday 15th November 2015, a conference was hosted by The Academy of Nutritional Medicine (AONM) in London featuring some of the best brains in the Lyme disease community. The presentations will shortly be available on the AONM website and a DVD will be released in the future. Professor B […]

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John Caudwell Speaks Out

Philanthropist, entrepreneur and billionaire, John Caudwell, has recently spoken out about his son, Rufus, and other family members being diagnosed with Lyme disease. He launched a monumental media campaign to spread the word, which included a live interview on ITV’s show ‘This Morning‘, during which he explained how the disease […]

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UK Lyme disease Protest 2015

UK Lyme sufferers, friends and family members protested outside the Department of Health on 13th May 2015 to demand a change in the way Lyme disease is handled in this country. Patients want to see improvements in the diagnostic and treatment process of Lyme disease as well as recognition of […]

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Public Health England Lyme Disease Open Day March 2015

PHE conducted a very last minute open day on 25th March 2015, changing the date with less than two weeks’ notice. The few people who did manage to make it reported back from the meeting and the following document is now available giving detailed information on the event. Sadly, many […]

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