MPs meet Lyme Sufferers!

MPs gathered in Room T, Portcullis House on 6th September 2016 for the drop-in meeting to meet Lyme disease sufferers and their loved ones to discuss the very important issues of Lyme disease testing, diagnosis and treatment. It was a chance for LDUK members to share their personal stories and […]

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Chris Packham and Big Tick Project in Wimbledon!

          On 2nd September 2016, naturalist and TV presenter Chris Packham will be meeting pet owners on Wimbledon Common as part of the Big Tick Project and to kick off ‘Tick Awareness Month’. He will be giving free talks throughout the day on the dangers of […]

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MP Drop-In Meeting on Lyme Disease

  CALLING ALL MPs! Teresa Pearce MP has arranged a drop-in meeting for MPs and Lyme disease sufferers to discuss the very important issue of Lyme disease which was raised by one of her constituents. We would be grateful for any support from other MPs if they are available to […]

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Caudwell Lyme Disease’s Patient Survey Results Published!

Source: Caudwell Lyme Disease The charity, Caudwell Lyme Disease has now published the results in full of a survey conducted to find out more about Lyme disease patients’ experiences with with NHS care. Many LDUK members took part in the survey and the results highlight major problems with the way […]

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NICE Guideline Scope Stakeholder Comments Published

  ‘Lyme Disease UK is a patient support network with nearly 4000 members and bears witness daily to thousands of patients who are suffering on an inhumane scale. Many have been ridiculed by medical professionals in various disciplines, dismissed, belittled, neglected and left with increasingly frightening and painful symptoms for […]

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UK Lyme Disease Protest Video!

“This is such a serious health crisis” LDUK group member Rollo Skinner has created this very powerful and moving film after interviewing many Lyme disease sufferers who attended the 2016 protest in London. Against the dramatic backdrop of Westminster, this video documents the plight of Lyme disease sufferers in this […]

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‘Getting Better’ by Rico Franchi

  “I’d say that I’m now close to being back to somewhere that resembles my old life. The most important medicine of all was my own mindset. My affirmation was “I’m getting better everyday” – Rico Franchi Singer/songwriter, vocal coach and LDUK group member Rico Franchi has released a charity […]

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Letter to MPs and LDUK Response to Government Petition Statement

  LDUK group members signed and shared a petition demanding better testing and treatment for Lyme disease which generated over 10,000 signatures. The government then had to issue an official response which can be found here. LDUK members were dissatisfied with the official response and some prepared their own responses […]

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Vis-a-Vis Symposiums event, October 2016

The charity Vis-a-Vis Symposiums is hosting an event in London on 1st October 2016 where international experts will give informative presentations aimed at doctors and vets. The speakers are Dr Raxlen and Dr Spector from the USA, Professor Perronne from France, Dr Jack Lambert from Ireland and Dr Hany Elsheikha […]

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UK Lyme Disease Protest 2016

LDUK members were involved in two protests this year – one in Bath and one in London. The 10 aims of the protests can be found here. The events achieved unprecedented media attention with patients being interviewed around the country in newspapers, on TV and on local radio shows as […]

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