simone sheppard lyme disease

BBC News Item on Lyme Disease interviewing Simone Sheppard

Simone Sheppard from Aylesbury was interviewed by BBC News on 31st March 2017. She didn’t agree with the Motor Neurone Disease diagnosis her father, Alan Sheppard, was given after he fell into a coma in 2014. He had the classic bulls eye rash and then the family dog died from Lyme […]

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All Party Parliamentary Group- update!

Following two successful MP drop in meetings (more info here,) organised by Teresa Pearce MP and Deb Collins, an All Party Parliamentary Group for Lyme disease has now been formed. The group will be co-chaired by Simon Hoare MP and Michelle Donelan MP.  The Lyme community is so grateful that […]

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top lyme disease blog

LDUK Receives Top Lyme Disease Blog Award

We’re thrilled to announce our inclusion in Feedspot’s top 25 Lyme blogs at number 14. So many fantastic global publications are on the list such as Lymedisease.org, CanLyme and Global Lyme Alliance. Our goal for the blog is to create quality posts about Lyme disease from a patient perspective. To help […]

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Lyme Ninja Radio Comes to the UK

Lyme Ninja Radio is ‘the #1 podcast for people with Lyme disease’. The well established show interviews experts and patients alike and this time, it has been the UK’s turn in the Lyme Ninja Radio limelight! They’ve recently featured two well known UK pracitioners and a UK patient. #121 Chantelle […]

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In My Blood – A Story of Lyme Disease in the UK

    In my Blood is an in depth look at the complex and baffling world of Lyme disease in the UK, as told by people whose lives have been shaped by it. The piece starts with the difficulties surrounding diagnosis and how many patients took years to finally get […]

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Lyme Interrupted – A Film about Lyme Disease

Lyme sufferer Ethel, with a little help from her friends, created this informative and extremely moving film,  Lyme Interrupted, for a school presentation she gave on Lyme disease. The film documents how fit and active young people can be struck down by the illness, how it affects their daily lives […]

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Lyme Disease Action MP Briefing

Thank you to the charity Lyme Disease Action who held a briefing for MPs in Westminster on 16th November 2016. A request for feedback was put out and so LDUK gathered some comments from group members and sent in information which we felt should be included in the briefing. LDUK […]

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Raising Awareness – 360° infographic!

The Lyme disease UK patient community is growing by the day. We now have more than 5000 people taking part in our discussions, learning from and supporting each other through the Lyme journey. Our group never fail to surprise us with their brilliant ideas for raising awareness and we wanted […]

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