US Tick-Borne Working Group Launches

We have been closely following the federal Tick-Borne Disease Working Group across the pond, in Washington DC. “The Tick-Borne Disease Working Group was established by Congress in 2016 as part of the 21st Century Cures Act to provide subject matter expertise and to review federal efforts related to all tick-borne diseases, to […]

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The Global Natural Healthcare Trust Charity Conference

“There has to be a way forward when you are living with Lyme Disease” On 25th November 2017, some LDUK members attended the conference ‘There has to be a way forward when you are living with Lyme Disease’  by The Global Natural Healthcare Charity Trust in Edinburgh. Hosted by charity […]

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AONM November 2017 – ‘Waking to a New Dawn’

Some of our team attended the Academy of Nutritional Medicine’s excellent international conference ‘Waking to a New Dawn: The Emergence of 21st Century Acquired Immune Deficiencies & Innovative Solutions’ on 19th November 2017 in London. There were stunning presentations from renowned experts, Professor Malcolm Hooper, Dr Sarah Myhill, Dr. Judy Mikovits, Dr. […]

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Our Response to the Draft NICE Guideline

‘An Inadequate Tool for Doctors and Patients, Seriously Undermined by Lack of Evidence’ Lyme Disease UK is a registered stakeholder in the NICE Lyme disease guideline writing process. As the UK’s largest patient support network, taking part in this process has been an important priority because once finalised, the guideline […]

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LDUK Attends ‘Unrest’ Preview

Earlier this year Lyme Disease UK was approached by the Unrest impact team who had been tasked with bringing the film to the UK and getting us involved  in promoting their award winning documentary across our various social media platforms. Written & filmed by ME sufferer Jennifer Brea, the film […]

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‘Unrest’ – UK Screenings

An Award-Winning Film about ME Lyme disease and ME patients often live in a parallel universe. There are so many overlaps between the two conditions. How many ME patients have Lyme disease? How many of the associated co-infections and viruses which can overwhelm Lyme disease patients’ immune systems also affect […]

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Janey and Lorraine Scottish Parliament for Lyme disease awareness

Scottish Parliament Public Petitions Committee

On 14th September 2017, LDUK members, Janey Cringean and Lorraine Murray presented to the Scottish Parliament Public Petitions Committee on behalf of Tick-Borne Illness Campaign Scotland regarding their petition “PE01662: Improve Treatment for Patients with Lyme Disease and Associated Tick-borne Diseases“. Janey gave a five minute introductory presentation on Lyme […]

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NICE logo

NICE Guidelines – What’s Next?

In 2015, LDUK registered as stakeholders in the process. Representatives from LDUK attended a stakeholder meeting in February 2016 and submitted our comments on the draft scope. NICE completes five steps before new guidelines are published. The Lyme disease guidelines are currently at step 3. The details of the steps […]

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Samantha Ash with Matt Dawson

Matt Dawson Speaks Out

Matt Dawson with LDUK Spokesperson, Samantha Ash On 21st August, rugby star Matt Dawson spoke out about his Lyme Disease diagnosis and subsequent heart surgeries. Dawson sustained a tick bite while out in a London park with his family. Talking initially to Radio Five Live he described his symptoms, the […]

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