Our Response to the Draft NICE Guideline

‘An Inadequate Tool for Doctors and Patients, Seriously Undermined by Lack of Evidence’ Lyme Disease UK is a registered stakeholder in the NICE Lyme disease guideline writing process. As the UK’s largest patient support network, taking part in this process has been an important priority because once finalised, the guideline […]

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LDUK Attends ‘Unrest’ Preview

Earlier this year Lyme Disease UK was approached by the Unrest impact team who had been tasked with bringing the film to the UK and getting us involved  in promoting their award winning documentary across our various social media platforms. Written & filmed by ME sufferer Jennifer Brea, the film […]

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‘Unrest’ – UK Screenings

An Award-Winning Film about ME Lyme disease and ME patients often live in a parallel universe. There are so many overlaps between the two conditions. How many ME patients have Lyme disease? How many of the associated co-infections and viruses which can overwhelm Lyme disease patients’ immune systems also affect […]

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Janey and Lorraine Scottish Parliament for Lyme disease awareness

Scottish Parliament Public Petitions Committee

On 14th September 2017, LDUK members, Janey Cringean and Lorraine Murray presented to the Scottish Parliament Public Petitions Committee on behalf of Tick-Borne Illness Campaign Scotland regarding their petition “PE01662: Improve Treatment for Patients with Lyme Disease and Associated Tick-borne Diseases“. Janey gave a five minute introductory presentation on Lyme […]

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NICE logo

NICE Guidelines – What’s Next?

In 2015, LDUK registered as stakeholders in the process. Representatives from LDUK attended a stakeholder meeting in February 2016 and submitted our comments on the draft scope. NICE completes five steps before new guidelines are published. The Lyme disease guidelines are currently at step 3. The details of the steps […]

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Samantha Ash with Matt Dawson

Matt Dawson Speaks Out

Matt Dawson with LDUK Spokesperson, Samantha Ash On 21st August, rugby star Matt Dawson spoke out about his Lyme Disease diagnosis and subsequent heart surgeries. Dawson sustained a tick bite while out in a London park with his family. Talking initially to Radio Five Live he described his symptoms, the […]

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Kestrels FC supporting LDUK

Maidstone Kestrels U11 Fun Day!

On 26th August 2017, over 800 people turned up for the football team’s fun day in beautiful sunny weather. Half of the proceeds from the day went to LDUK. Ann from LDUK and Adam Wearing the LDUK logo, Adam Keil, the organiser said, ‘We are just glad and proud to […]

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Hannah Grech with her artwork

Children’s Poster Competition

LDUK hosted a children’s Lyme disease awareness poster competition as part of our school awareness pack campaign. We are delighted to announce the winner and the runners up! WINNER:  Hannah Grech, 10 years old St. Mellion C of E School Saltash RUNNERS UP: Laura Miles 9 years old St. Mellion C […]

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Summer 2017 Fundraisers

A couple of fantastic fundraisers for Lyme Disease UK have taken place recently. A massive thanks go to everyone involved! Literary Events The author of the novel ‘Finding Joy,’ Morven-May MacCallum has been raising some money for us at various literary events.  ‘Finding Joy’, is inspired by her own experience of […]

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