5 Years of Patient Support – the LDUK Online Community

Over the past 5 years, the Lyme Disease UK’s Online Community has grown from two founding patients, Natasha Metcalf and Louise Dean, to a community of over 9,500 members from across the UK and further abroad. Whilst it is wonderful that so many patients and their loved ones who are […]

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Join our Online Community

Are you looking for Lyme disease advice and support? Our Online Community on Facebook is a friendly space for you to ask questions, share experiences, find support and chat to people who understand. Get to know your Lyme community and join the conversation. Facts about our Online Community Founded in […]

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Online Support

Social Media You can find out public Facebook page here where we post Lyme disease related news and information and you also reach out to us this way. You can follow us on Twitter @UKLyme and find us on Instagram too. Lyme Disease UK also run an Online Community on Facebook. […]

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Am I Going Mad? By Peter Hill

An Insight into my Personal Journey with the Psychiatric Aspects of Lyme Disease Why am I feeling this way? This will always be the first question we ask ourselves no matter what ails us. We may need the reassurance of someone we trust to tell us what it is that […]

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Julia in Dubai on a 'better day'

Meet The Team: Julia Knight

In 1999 I was bitten by ‘something’ while on holiday at Center Parcs near Thetford, Norfolk. Despite being a senior paediatric nurse I had no knowledge of Lyme disease. Over the next few months I became progressively unwell resulting in me being unable to get out of bed, sleep, swallow […]

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A 5 Year Reflection

As Lyme Disease UK turns 5 this year, it only seems right to reflect on this period of time which spans half a decade and to take stock of what has developed organically over the years. I have to pinch myself everytime I realise that a Facebook group which I […]

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How Long Did It Take You to Get Diagnosed?

Lyme disease is still widely misunderstood by the medical profession. Through our awareness work, it is our wish that people are diagnosed more quickly so that they don’t miss the crucial window for early treatment but so many members of our Online Community have suffered for years on end, often […]

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What Do You Wish Your Doctor Understood About Lyme Disease?

Many Lyme patients hit a brick wall when we are faced with doctors who belittle our suffering and who are not knowledgeable about Lyme disease and its devastating effects. We asked our Online Community what they would like doctors to understand when it comes to living with Lyme disease: “That […]

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