Join our Online Community

Are you looking for Lyme disease advice and support? Our Online Community on Facebook is a friendly space for you to ask questions, share experiences, find support and chat to people who understand. Get to know your Lyme community and join the conversation. Facts about our Online Community Founded in […]

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Online Support

Social Media You can find out public Facebook page here where we post Lyme disease related news and information and you also reach out to us this way. You can follow us on Twitter @UKLyme and find us on Instagram too. Lyme Disease UK also run an Online Community on Facebook. […]

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NICE Lyme Disease Guideline Published

The NICE Lyme disease guideline has now been published and can be accessed here. LDUK commented extensively on the draft guideline, labelling it as ‘an inadequate tool for doctors and patients, seriously undermined by lack of evidence’. Our comments can be found here. The usefulness of the guideline is therefore […]

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Kay’s Cards!

LDUK member Julie posted a heartwarming request in our Online Community. Her daughter Kay suffers from Lyme disease and her birthday was coming up… Kay has been ill off and on for the last 10 years but basically couch/bedridden for the last 1 ½ years.  I know that birthdays are […]

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All-Party Parliamentary Group Meeting

On 23rd January 2018, two representatives from LDUK attended a meeting held by the All-Party Parliamentary Group for Lyme disease along with representatives from other Lyme disease organisations and patient groups in the UK. Members of each group were given a chance to present and Lyme Disease UK’s presentation can […]

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Lyme disease Testing

Testing for Lyme disease is highly problematic. We need better testing which is universally accepted so that patients know where they stand. Current testing is flawed and and there is no test available to indicate when the infection has been eradicated. Some private laboratories argue that their testing is superior […]

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Wake Up To Lyme Campaign!

May is Lyme Disease Awareness Month! LDUK wants to prevent further people being infected with Lyme disease this Summer. Our ‘Wake Up to Lyme’ campaign aims to raise awareness on how to prevent tick bites, how to safely remove ticks and the importance of early treatment for those people who become […]

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Contact Us

For patient support enquiries, please join our Online Community on Facebook or send an email to support@lymediseaseuk.com For media enquiries: media@lymediseaseuk.com To request an awareness pack (includes posters, leaflets, tick awareness cards and car stickers) and take part in our Wake Up to Lyme Campaign in May 2018 please complete this […]

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About Us

Lyme Disease UK exists to support people who are living with the effects of Lyme disease and looking for support and guidance. We are a team of volunteers who work hard to provide support and raise awareness of Lyme disease amongst the UK public and healthcare systems. Our sense of […]

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Home

Welcome to Lyme Disease UK, a non profit organisation founded by Lyme disease patients and run by volunteers. We are the largest patient support network in the UK and we are stakeholders in various processes including the NICE Lyme disease guideline, the independent reviews on Lyme disease commissioned by the […]

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