Join our Online Community

Are you looking for Lyme disease advice and support? Our Online Community on Facebook is a friendly space for you to ask questions, share experiences, find support and chat to people who understand. Get to know your Lyme community and join the conversation. Facts about our Online Community Founded in […]

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Online Support

Social Media You can find out public Facebook page here where we post Lyme disease related news and information and you also reach out to us this way. You can follow us on Twitter @UKLyme and find us on Instagram too. Lyme Disease UK also run an Online Community on Facebook. […]

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How Long Did It Take You to Get Diagnosed?

Lyme disease is still widely misunderstood by the medical profession. Through our awareness work, it is our wish that people are diagnosed more quickly so that they don’t miss the crucial window for early treatment but so many members of our Online Community have suffered for years on end, often […]

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What Do You Wish Your Doctor Understood About Lyme Disease?

Many Lyme patients hit a brick wall when we are faced with doctors who belittle our suffering and who are not knowledgeable about Lyme disease and its devastating effects. We asked our Online Community what they would like doctors to understand when it comes to living with Lyme disease: “That […]

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You Know You’re a Lymie When…

One of the hallmarks of Lyme disease is the dreaded ‘brain fog’ which can lead to some rather embarrassing mishaps. Sometimes, laughter is the best medicine and so we asked our Online Community to share some of their foggy moments by finishing the sentence ‘You know you’re a Lymie when…’ […]

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John Caudwell’s Funding Pledge for Lyme Research

Entrepreneur, philanthropist and Chair of Caudwell LymeCo Charity, John Caudwell, has pledged over £1 million for Lyme disease research, provided that the Government also pours money into an urgently needed research fund to find out more about this misunderstood disease. He has also kickstarted an email campaign called ‘Lobby for […]

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How Does Lyme Disease Affect Your Relationships?

This is a very hard and emotional question for many people to answer but we wanted to get a sense of how people’s relationships in our Online Community are affected. Many people feel a great sense of loss as those who were once so dear to us simply can’t or […]

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How Does the Weather Affect Lyme Patients?

As Brits, one of our national pastimes seems to be complaining about the weather; it rarely seems to please us! One minute it’s too hot, the next it’s too cold and gloomy. When it comes to Lyme disease and some other chronic illnesses as well, the weather seems to play […]

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