Lyme Disease Protests 2017 – London and Edinburgh

The Lyme disease protests 2017 will be held in Edinburgh on Wednesday 24th May, and in London on Tuesday 18th July.

London

Tuesday July 18th 2017 – 11.00am – 3.00pm – Parliament Square, Westminster, London

Scotland

On Wednesday 24th May, 2017, we will assemble, at 11.30am at LOCATION 1;
GMC (General Medical Council) Building
Address; The Tun, 4 Jackson’s Entry, Edinburgh EH8 8PJ

At 1.30pm, we shall move onto, LOCATION 2;
Holyrood Parliament Building
Address; Scottish Parliament Building, Edinburgh EH99 1SP

The protest will continue, until 3pm.

 

For more information about the protests and the protest aims, please see the protest website and the Facebook event listing. Please come along and show your support!

2016’s protests and awareness month created a huge amount of media interest, click here to see the round up of last year’s events.

lyme disease protests 2017

 

 

Why Protest?

Lyme disease is becoming increasingly common in the UK.  Official estimates are up to 3000 new UK cases a year 1,  although patients and GP’s2 suspect that this figure is a large underestimate. Some cases of Lyme can be relatively mild, resulting in a flu-like illness, fatigue and malaise, which can resolve with short courses of antibiotics.  However, some cases are much more serious, resulting in long term, debilitating symptoms such as arthritis, nerve damage, pain in muscles  and joints, headaches, dizziness, nausea, sleep disorders, hormonal imbalances, hearing and sight problems, bladder and gynaecological problems, digestive disturbances and food intolerances, weakness in one or more limbs, severe fatigue, numbness, facial palsy, rash,  confusion, anxiety, difficulty thinking clearly, emotional outbursts and rage, dementia, seizures, strokes, cardiac problems, and rarely, death3, 4.

Unfortunately, this serious, chronic Lyme is not fully recognised by UK doctors and medical organisations/authorities, and patients are usually misdiagnosed  and /or not given adequate or appropriate treatment. Blood tests may be unreliable5,6,7,8.  Often patients are told it is all in their heads 9.  Chronic Lyme disease is a serious, yet treatable illness – yet chronic Lyme patients are left to deteriorate or else they must pay for expensive private treatment and diagnosis. Lyme patients across the world are standing up to be counted and are demanding action- NOW!!!

  1. http://www.hpa.org.uk/Topics/InfectiousDiseases/InfectionsAZ/LymeDisease/GeneralInformation/lym010FAQ/
  2. http://www.facebook.com/pages/Lyme-Disease-Action/122058224483868
  3. http://www.borreliose-gesellschaft.de/Texte/guidelines.pdf
  4. http://www.lymediseaseaction.org.uk/about-lyme/symptoms/
  5. http://www.isrn.com/journals/immunology/2012/719821/
  6. http://ganymedes.lib.unideb.hu:8080/udpeer/bitstream/2437.2/18728/1/PEER_stage2_10.1007%252Fs10096-011-1157-6.pdf
  7. http://www.thelancet.com/journals/lancet/article/PII0140-6736%2890%2990606-6/abstract
  8. http://www.lymeinfo.net/medical/LDSeronegativity.pdf
  9. http://casereports.bmj.com/content/2012/bcr-2012-006840.short